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Posted 11/1/2011 8:54 PM (GMT 0)
I've heard about pregnant women experiencing an enhanced sense of smell, but I think I have the same thing sometimes with my lupus!  Every once in a while I have a day or two where everything just smells intense, and generally not in a pleasant way.  Yesterday at work the girls ordered chinese takeout, and I was totally gagging on the smell.  It smelled like rotten cabbage and grease.   Yuck!!  After several hours when I was still smelling it, I asked the front desk girl to spray air freshener.  I've had other days where every carpeted room smelled like mold, and one day I kept smelling gasoline (that wasn't so bad).

Has this happened to you?

Posted 11/1/2011 11:21 PM (GMT 0)
I've been like that for years. My family calls me "Super Snoot". There are somethings I wish I couldn't smell so well...ewwww!
I can't stand to be around someone with a cold because I can smell it on them. Nasty!
Posted 11/2/2011 7:09 PM (GMT 0)
Today I've been smelling the food from the other side of the office (it's in a different section of the building).
Too strange!
I'm glad I'm not the only one with the "super snoot". :-)
Posted 11/2/2011 7:30 PM (GMT 0)
what about the opposite. I cannot smell anything and the few things I think I smell are usually cat pee, dirty ash trays or vomit. Not too pleasant. And, the doctors have no explanation. Most people that lose their sense of smell have suffered blunt trauma to the head/face and that has never happened to me.

The only thing I can find on line that has anything to do with a "loss" of smell is Parkinsons. Quite a few people on that particular forum said that they started out with that as their first symptom.

Not looking to good for me.
Posted 11/2/2011 7:44 PM (GMT 0)
Sometimes my sense of smell is hyper -- but I am more bothered by the days when my *hearing* is hyper! Then there are days when I feel like I can't hear anything! I dunno' about days when I can't smell anything, guess I don't notice, but maybe those are the days all food seems awful. My eyesight also varies somewhat.

My impression, after 9 years, is that the lupus (or maybe my sjogren's) both have random inflammation that comes & goes...when inflamed, my ears hear more, my eyes see less. Or sometimes it varies.

Aren't auto-immune diseases a fun bunch? lol
Posted 11/2/2011 10:30 PM (GMT 0)
Yeah, I've had those weird eyes and ears days, too.
Today is "very loud ringing in my ears" day. Yesterday was blurry vision day. Who knows what tomorrow will bring? :P
Posted 11/3/2011 7:26 PM (GMT 0)
Well, at least life's never boring with an autoimmune disease, right? :-)

mscrowbar, I've also noticed that the majority of smells are unpleasant.
But I guess we wouldn't complain if everything smelled like flowers and baking bread! Hahaha!
Posted 11/10/2011 1:19 AM (GMT 0)
I tell you my sense of smell went all haywire after gastric bypass 9 years ago. It was oober sensitive, it almost made me cranky actually especially towards unpleasant things like people who thought bathing was unnecessary LOL. Right now with the Lupus problem that I have I have very little taste buds and my mouth feels so weird I can't really describe it and my sense of smell is actually not there for the most part so those senses for me are quite dull right now. I don't know if there is a connection or not but as weird as autoimmune is I wouldn't doubt it.
Posted 11/14/2011 9:39 PM (GMT 0)
Oh its happens to me now somewhat more and i thought i was the only 1
Posted 11/15/2011 10:45 PM (GMT 0)
Let's take a page out of couchtater's book and call ourselves the Super Snoot Club. That's kinda catchy, right?

Bloodhounds unite! LOL.
Posted 11/17/2011 8:41 PM (GMT 0)
I think that I've read on some of my meds that may be a side effect however I have no idea which one. There is also something called multiple chemical sensitivity, my cousin has that. No one can wear anything, not even lotion around her or she will get horrible migraines, nausea, etc.

Denita, I read that you have secondary Sjogren's. Unfortunately, losing sense of taste and/or smell can be a nasty effect of the disease. May be what's causing that?
Posted 12/21/2011 6:42 PM (GMT 0)
 I have a conditon called Multiple Chemical Sensitivity. I have a sense of smell like a Green Canary. I can't handle any chemicals. They bring on everything from nausea, to migraines, fatigue, pain, to completely unresponsive because I get an ashma like reaction. We use all organic products and still have to watch the scented organic products.

I have been like this since 2004. Haven't been in a mall, grocery store since 2006. I get so ill and just want to go to bed. I have a wealthh of info on this.

In the US 46 states have claimed one week in May as MCS awareness month.

Many people say they think it is in my head. However, it has saved my and my mother's life on more than one occasion. I could smell gas in the house even my mother hasn't been able to smell. The consumers company took 3 hours but finally found three minute leaks. And another time I smelled gas that was caused when a carbon monoxide leak combusted with the furnace coming on. It took four furnace people to finally believe me and found the leak.

While my sense of smell can be annoying at times ( and very isolating) it is  blessing to me because it allowsa me to know what is making me ill and get away from it. and it has also saved my life.

Posted 12/21/2011 6:47 PM (GMT 0)
I am responding to the one who has no sense of smell. My brother is often that way. I believe it is because he works on a golf course and is exposed to so many allergens including pesticides (not only) but yes. And my Environmental dr said that people like him often loose their sense of smell due to overexposure. He once had his sinuses operated on and got his sense of smell back but after going back to work his ability to smell didn't last long.
Posted 5/16/2013 6:59 PM (GMT 0)
 I also am experiencing enhanced smells at first it started out once in awhile but now I notice more and I can't take it. everything from food cooking to smell of bedding and room, yet no one else can smell it....making for very time.

 

Posted 5/16/2013 7:09 PM (GMT 0)
 I can't stand all the hyper smells when they occur I get a carpenters mask and stuff it with tissues...so I can't smell anything..and I cut myself off a lot of the meds because of side effects, from pain meds to metholtrexate. Just staying on the Plaquenil...too tired most of the time and another thing I do is take sleeping bag outside find safe place and sleep outside.

 

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