Posted 1/26/2013 4:52 AM (GMT 0)
Right now my symptoms are considered moderate. If your organs are involved then it's considered Severe.
I hurt everyday all over. I'm fatigued most of the time. I do get spells of energy but they are short lived. My most painful places are my elbows, wrists, fingers, knees, top of my feet, tips of my toes, shoot.....just say every joint.
I get rashes and fatigue from sunshine, fluorescent lighting, halogen lights, and 3 way light bulbs. My bedroom is lit by LED light ropes. When I'm outside the house I wear special designed clothing with sun protection made in them and a hat.
Right now my kidneys have a slight protein spill from lupus. They are being watched carefully.
I really hate the brain foggy days. I feel like it's a great effort to think and do things. I basically just veg on those days until the fog lifts.
I do love my massager. It's the purcussion kind, but I need to be careful around my tender points from my fibromyalgia. It will make them hurt more.
Long hot showers or soaks in the tub help a lot with the stiffness too.
My family didn't believe me either when I started getting sick. I bought a book about Lupus and had them read it and hoped they'd understand it better.