Hair loss

Joico K-Pak Deep Penetrating Reconstructor...they had a smaller sample bottle I bought to try it out first (vs spending $25 and it not working). its not as thick as I would have expected but I left it on about 5 mins and my hair went from looking dead, dry and brittle to normal after I blow dried it, and its been 2 days so far and still looking good!

If your on about the leave in conditioner it says to use it everyday but i dont aim to do that and i find overall the product still works. At the moment when you wash again aim to use it on towel dried hair only the leave in conditioner and dont use it everyday i dont use it everyday just when i wash it, it makes no differnce to me.

You know i was like you exactly the same i would see an improvement in my hair for it to next time fall out again its tough when its like that but dont give up hope and think its not working keep using it everytime you wash your hair leave the shampoo in for 2 minutes massaging to the scalp all the way to the ends its essential to get in from  scalp to ends so the treatment can get to the whole hair making it stronger and less likely to break of anywhere like split ends for example so rinse then follow with conditioner leave in for 1 or 2 minutes then rinse again towel dry the hair patting only dont rub together to dry the hair it causes it to break more.

Aim to not style your hair overly using other styling products i even switched brushes my hair is soft and easy to manage yet i changed my brush to an afro brush and find it smoothes flyaways and yet doesnt pull my hair out at all i switched to the afro brush when my hair was falling out drastically and yet i havent had any problems since, in fact i washed my hair yestereday and i  swear to you i  had no hair at all down the plughole. i dont using curling irons or striaghtners either they break your hair at least if you cant live with out them like me im waiting to my hair is full and thick again then i will use them but not to much.

As for body hair have not experience that i heard the eyebrows will only fall of if you are using chemotherapy treatment for lupus my body hair is the same as before really sorry i dont no

But Hope i can help otherwise, good luck again

Danielle

 

You no just coming on here talking to others who have what i have is helpful im 18 was diagnosed last year at 17 and it was the worst time of my life i wont lie but god listened the way my tablets work for me is absolutly amazing and have not had any major flares since just general knee pain and that im on plaquenil 200mg a day (down from 400mg), prednisolone 5mg-7.5mg (depending on pain down from 20mg), Omeprazole 20mg to control sickness or stomach ulcers that might be caused by the prednisolone, Adcal D3 for vitamin D deficent, Ferrous sulphate 200mg to control anemia and asprin 75mg to thin the blood because of my antiphospholipid syndrome. Im in the UK- London. Dont be to scared about the appointment i kind of knew it was coming mostly because of my butterfly rash, joint pain, extreme fatigue and lots more so when he said i have lupus it was like ok a shock but their are loads of people out there worse of i think the most think that took me was my hair im one of those girls that keep up with the hair trends so when it fell out it was a huge blow but its started to get better my hair is growing extremly fast too dont no why that is but most importantly its not falling out. I used to get depressed like everyday until i used nioxin i became patient and trust me everyone like my friends wont believe i have lupus i disguise my hair in a way that makes it look like i still have thick hair.

Heres my email, so we can chat more its great to know i can help its [email protected]
whats your email?

So glad to help Danielle.x YOU WILL PULL THROUGH!!!

Its nice to know that youre not the only person going through this...and there are still way worse things that we could all have. Hair can always grow back - or worst case scenario we get wigs! I wish joined one of these forums a long time ago because I basically kept everything to myself when I was diagnosed. My husband is a doctor and he was so devastated when I was diagnosed that I had to be the strong one!!! Its grea to share stories and advice with other people who know exactly how you feel.

FYI - I tried ANOTHER hair product (just because I am on a never ending quest to get my hair looking healthy) and it worked great too - its called Enjoy Reconstructor. Also kinda pricey but worth it!!

Happy Friday!!!

Ahh before we start check your email i sent you

Cortizone shots i have heard of but not experienced and thats only for really severe hair loss like alopecia type bald patches and that trust me patentice with the hair can reward well i was one that never had any and hated waiting but when you see the email that will give you hope hopefully LOL

That product is quite pricey its like a masque thing for the hair i checked it it seems ok but never stop using the nioxin as your main shampoo and conditoner by the way using too many products works the hair up to much possibly making it break more this is all mounting up your money remember i stuck with nioxin after failing with so many other products and yet i was using it say 1 month and my hair stopped falling out altogether and as im continuing now new hair is definatly thier short bits are popping out everywhere its a good feeling.

Trust in what im saying using different products didnt help me i stuck with one and it really helped if nioxin wasnt around then i would be going out of my mind by now but im not so thank god for that.

Never give up with the nioxin. P.S dont forget to check the email that will be really reasurring i attached some pictures.

Danielle .x

Danielle,

i dont see the email you sent me??!!!

Laura,

Its me Danielle How did the appointment go i sent an email but you musnt of checked it yet let me no

Danielle

My eyelashes always seem to fall out on my right eye when I have a flare so I wouldn't be too surprised if you might be losing some but don't panic!! Theres some eyelash growth stuff you can get on EBay it costs $16.99 called LashEm Measurable Difference Lash Gel and it really works! It's sort of like Latisse and it makes your lashes thicker and longer. But I have to use fake ones on that side when the fall out until they grow back so I have fake strips and fake individual little "clumps" so I can try to make them look as "normal" as I can.
I was diagnosed at about 17 and I'm now 44 so, I've been around the block with a lot of this Lupus junk. LOL!