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Posted 1/8/2014 3:52 AM (GMT 0)
My name is Shelly. In 2001 I was told I may have Lupus. Symptoms came and went and due to life moving fast I ignored a lot of them and didnt go to the doctors much. In 2011 the symptoms became unable to ignore. I started having tons of tests. My primary doctor told me I do not have Lupus. August of this year I had a stroke. A series of tests ans appointments.

Today I ended up in the ER for chest pains. Longer story short a rheumatologist came to see me. He put together my history from the last 12 years. He looked at my physical symptoms, the butterfly rash being very prominent. And he said I definitely have Lupus.

I am so excited and happy. I have a definite diagnosis. I have medication I can take. I have a plan, I am encouraged!

I have had to quit 4 jobs in the last 6 years because I get so tired and have such intense joint pain. I have become a serious wet blanket for my husband and children. I am so hopeful for my future!
Posted 1/8/2014 4:16 AM (GMT 0)
Welcome, Shelly.
Postive aditudes helps in dealing with this.
If you need further information about lupus we are here for you.
We're not doctors just others who are on the same roller coaster ride.

Here's to a calm ride with very few sudden drops.
Posted 1/8/2014 4:58 AM (GMT 0)

couchtater said...
Welcome, Shelly.
Postive aditudes helps in dealing with this.
If you need further information about lupus we are here for you.
We're not doctors just others who are on the same roller coaster ride.

Here's to a calm ride with very few sudden drops.

Thank you for the welcome. I am hoping this is the last night I have to stay in the hospital for this. The doctor said that I need to reduce stress. Do you find that to be a contributing factor to symptoms? I have already decided to cut down to part time at work, maybe forever. But definitely until the medications start working.
Posted 1/8/2014 6:02 AM (GMT 0)
Stress does seem to make me feel worse. What's more stressful than teaching?

I used to teach first grade, but I'm very photosensitive and the lights were bad for me. I have to avoid or cover up from all sources of UV rays....photocopiers, fluorescent lighting, tanning beds, CF bulbs, halogen lights, and of course the sun.
UV rays make me feel worse.
Posted 1/8/2014 6:49 AM (GMT 0)
Hi Shelly, welcome to the forums and sorry to hear you're not feeling well.

I was diagnosed last Dec. 4 and wound up in the hospital the last part of Jan with a Lupus flare and needing a blood transfusion. The first year is a lot of transitioning to this disease.

Yes, stress brings on the symptoms for sure and you will have a lot of fatigue so you will have to slow down and learn to pace yourself.

Anyway, get better and wishing you well.
Posted 1/8/2014 7:42 AM (GMT 0)

couchtater said...
Stress does seem to make me feel worse. What's more stressful than teaching?

I used to teach first grade, but I'm very photosensitive and the lights were bad for me. I have to avoid or cover up from all sources of UV rays....photocopiers, fluorescent lighting, tanning beds, CF bulbs, halogen lights, and of course the sun.
UV rays make me feel worse.

9

Hello Joy,

Teaching is stressful, I was a TA for a few years. Funny you should say something about the lights and copiers. The joke in my house has been that work makes me sick. And now I am finding out that it just may actually be making me sick. Lol
Posted 1/8/2014 7:45 AM (GMT 0)

txplowgirl said...
Hi Shelly, welcome to the forums and sorry to hear you're not feeling well.

I was diagnosed last Dec. 4 and wound up in the hospital the last part of Jan with a Lupus flare and needing a blood transfusion. The first year is a lot of transitioning to this disease.

Yes, stress brings on the symptoms for sure and you will have a lot of fatigue so you will have to slow down and learn to pace yourself.

Anyway, get better and wishing you well.

I do think cutting down to part time will be necessary and pacing myself is something I have never been good at but will need to perfect the art of.

You had to have blood transfusions? Is that common? I hope you are feeling better now?
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