Newbie 17 years old with lupus my hair is falling out drastically

Wow i dont think this illness has hit me much to relise what its like i would hate to have my hair grow back and then lose it all again thats frustrating i never really liked the sun anyway but knowing that it all may fall out again thats annoying is there anyway to prevent it from doing that? and how can i tell if theres new hair growth my hair hasnt completed fell out but it dangerously thin even putting it in a ponytail is scary because its thin for a pony tail

Superglue?

As far as I can tell it's a matter of keeping Lupus quiet -- taking your meds, eating well, moderate exercise, and deep restorative sleep. Avoiding stress...

So there is hope im going to try my best what makes me stressed is my hair falling out believe me i know that sounds so vain but im so young and every girl my age loves hair.

Stubble, see i cant tell iv had a feel and yes theres something but i cant tell because i still have hair and i cant see to the scalp or anything so dont know really. Oh well everyone on here is so helpful can i just say you have all shed light on this stupid illness my hair will grow and everything will be alright the hard bit is to keep it controlled....Lol

Glad to know im not the only one going through this. I'm 20 years old and was diagnosed with Lupus two months after having my daughter. Before I knew what it was I was told it was just my hormones from her. Currently I am dealing with losing my hair. I had beautiful hair. Now it is patchy and extremely thin. I recently got the courage to get a wig. How is anyone else dealing with losing their hair?

Lady Lupus

Hi there everyone I was the young 17 year old with lupus who was losing her hair like crazy the one who wrote this post. However now I'm 19 and have taken the illness on the chin and I can say my hair is nearly there I did nothing to it apart from stop using heat on it and washed it with nioxin system 4 also as long as the illness is controlled so will the hair loss and you will begin to see new hair coming through I did wear hair pieces for the time being but now have for rid of them and people are complimenting how well my hair is going back to normal and how its incredibly thicker than before. I've had some ups and downs along the way am being tested to see if lupus has affected my brain as am losing memory a bit and far to much headaches and am also being tested foe diabetes as I can't stop urinating a lot I wonder of I should take the toilet everywhere sometime. Hope your all well
Danielle

Hi, it would be amazing if you'd email me cuz I would love to talk to you about lupus, I'm only 11 . So my email is <snip> and this is my partial story


Hi,
I don't think I'm supposed to put my age on here but I just want tell you I'm really young. In between 1-13 years old. I started out last year with severe soreness and tiredness I couldn't even go to school. I had a temperature of 107 degrees and I just felt awful. Now, lupus hits kids harder, lucky for you you're at an older age but obviously you've gone through some other stuff. The doctors thought it was Lyme but that just brought out the rash so then they knew it was lupus. So they gave prednisone and plaquenil and then stupid of them, I didn't have a doctors appt all summer which are the worst months for lupus. So I had an appt in October and then my kidneys were failing (lupus nephritis) and I had an outstandingly high blood pressure. So I was supposed to go to the hospital that night but I didn't want to so I went the next day I was in the hospital for a week on oxygen because they filled my lung up with water on Halloween night. At the end of the week I had my chemo treatment and then 2 days after I got to go home. I had chemo 9 times and now I take cell cept. Which I think im allergic to. So I take 60 mg prednison 50,000 mg of vitamin d, I'm only allowed to take Tylenol for pain:/ (being a kid) , 2,000 mg of cell crept, 20 mg famotidine, 225 of plaquenil , 30 mg of lisonopril, bactrim:) fun right?????

<Edited to remove email address. You can add email to your profile but we prefer to keep it out of the searchable areas. Also I removed your other posts as they were identical. Duplicate posts are not allowed.>

Post Edited By Moderator (Lynnwood) : 3/27/2014 8:24:43 PM (GMT-6)