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Posted 9/29/2014 8:51 AM (GMT 0)
I have been diagnosed with Lupus since 2010. Before that I was having seizures & never knew why. Since then I had them under control until 2 days ago! I got into 2 minor car accidents & thankfully nobody was hurt but I just want to know why I'm having these episodes again. When I went to the ER & the Dr. ran test, (EKG, X-Ray, blood work, MRI & Urinalysis... Everything came back normal except I had a UTI. The Dr. Said the smallest infection can trigger an episode. On top of that, I have been feeling sick with a sore throat, coughing & diarrhea.
Every time they do MRIs, Kat Scans or what ever needed of my brain, it comes back normal but I have seizures.
Does anyone know what can be done as far as procedure wise to stop or find out the cause of these seizures?! Please help.
I just want to live my life seizure free.

<Edited to add subject>

Post Edited By Moderator (Lynnwood) : 11/29/2014 8:53:29 AM (GMT-7)

Posted 9/29/2014 12:05 PM (GMT 0)
I'm so sorry this is happening to you.

I'm not the best one to reply because I'm still in the diagnostic stage (I have 4 of the 11 diagnostic symptoms including 1:320 ANA) but I just found out about the high ANA score last week. I will see a rheumatologist soon. I've spent years going to doctors for help with my symptoms and kept being told I had depression or chronic fatigue.

This past July I had a seizure out of the blue. All my tests came back clean (EEG, CAT scan and MRI). They put me on anti-seizure meds. Of course they didn't know about my high ANA at the time so I don't know if they give lupus patients anti-seizure meds.... But meds are out there to help with seizures. I'm seeing a neurologist for the seizure meds.

It will be interesting to see what happens if I get the lupus diagnosis. I wonder if the neurologist will pass me to the rhuemologist or if I'll continue seeing both.

I still have dizziness and I'm still light headed, even on the anti-seizure meds.

So, you might want to consult with a neurologist???

I hope you find help!
Posted 9/29/2014 1:21 PM (GMT 0)
Thx Kimstph. I know the experience of going through so many test & trying to figure out what is wrong is frustrating but you'll get there. Because I have a history of seizures with my Lupus, I have a Neurologist, Rheumatologist & a Cardiologist due to the fact that I have a heart murmur.
That seizure you had was scary I'm sure & there's a medical team out there that will help figure out how to get things on the right track for you.
Thanks for your help with my situation too.
Posted 9/29/2014 6:32 PM (GMT 0)
I WAS terrified when I had the seizure because I'm a breast cancer survivor and didn't know I had any auto-immune issues. Until tests came back clean I was sure my cancer had metastasized to my brain and I would be dead in 3-6 months. It was a very scary experience!

I hope you get the help you need to become seizure free!

Kim
Posted 11/29/2014 2:22 AM (GMT 0)
Hello I was recently diagnosed with lupus on the Saturday before thanksgiving.It was something I've lived with for 46 yrs and never knew until I visited a dermatologist,the physical I took last summer never produced anything wrong.Now that I've been diagnosed it would explain why my hair is coming out . . a lot. In the past my hair was my crown of glory,long soft pretty now thin as if I have cancer and sparse and getting hard to hide behind a bun. I'm thinking on top and balding and thinning on the sides top side to the back. I have joint pain,bursitis ,depression,ptsd,spinal stenosis,and last but not least sciatica. I wasn't diagnosed with none of these illnesses while living in Florida.,but my hair was still falling out. I also noticed my Rosie cheeks from time to time,but it wasn't as bad at that particular time. I do have allergies and a reaction to beinG in direct sun light and I'm very light sensitive. I noticed that before ever wearing glasses .. I now reside in heartland territory. Thank you for letting me share I've never told no one until now.
Signed mzanonymousone
Posted 11/29/2014 2:45 AM (GMT 0)
Mzanonymousone, I hope you get relief from symptoms soon. I'm sorry you are going this this trial!
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