Hello,
I originally posted this on the Fibo board but I didn't get any answers. This tells me that nobody who read the post has had these issues. Just wondering if anyone here has had them. Note: I have never been diagnosed with Raynauds, but thats what my hands and feet look like.
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Hello,
I have been sick for almost 2 years now. At the very beginning I was told I had Fibro but because of many odd symptoms and the fact that none of the Fibro treatments worked, I started seeing other doctors. I have over 30 symptoms. Some of them are strange even for Fibro though. Just wondering if anyone has these…
Of course I have the pain, fatigue, sleep issues, weakness etc. Some of the more unusual issues are: a diagnosis of Optic Neuritis (which is generally associated with MS), a blind spot in the middle of my vision for the first few minutes of each day, a condition known as Erythromelalgia (http://www.erythromelalgia.org/WhatisEM.aspx) on my hands, mild Raynaud’s on my hands, increasingly worse tremors in hands and arms and nearly constant skin inflammation. I also have a lesion on my brain that has not gotten worse oer 2 years of MRIs. Also, my sense of touch is greatly deminished. It feels like I ahve a sheet of plastic over my entire body. My skin is very sensitive and everything leaves a mark.
I have seen 25 doctors and just recently got back from the Mayo Clinic in Jacksonville Florida. They never find anything in my blood ad they tell me it’s not Lupus. Even the Mayo Clinic says it’s Fibro or something like it.
I have tried LDN, Cymbalta, diet changes, acupuncture, various herbs and naturopathy, exercise… Nothing helps and I keep getting worse.
Has anyone ever experienced these symptoms?
Thanks,
A