hello.... what i have found that works for discoid lupus...

I don't think so...I'm sore and tired but i work 60+ hours a week, so that send normal. I think.

Hi, do you have a diagnosis? .... If you do have a diagnosis then freaking out is completely normal, what I can recommend is that whilst researching keep an open mind and take up.something like yoga / meditation because freaking out makes it so much worse. It can be a very psychological disease, if I can keep a balance, through a lot of the ways I described above then I'm fine. It is a big journey and There is adjustment to be made but I love my life and have a ball... And I still go in the sun :) I have had to learn to look after myself in many different ways, I have diverted my career to one with few hours and responsibilities so I can enjoy life more... Which is a good thing for anyone if you can. There are so many ways to help yourself and be kind. I am happy to talk to you more :) it's not all doom and gloom I promise.

IF you have DLE, discoid, it is really imperative to avoid the sun and wear a high SPF sunscreen at all times. Yes, there are some people with SLE that can be in the sun, but they are few and far between. Sun avoidance is key.

So what kind of effects are caused by drinking? I am a daily or at least almost daily wine drinker And really don't want to give it up.

My dermatologist has told me that dermabrasion can exasperate discoid and cause it to flare. I am not willing to take a chance and make it worse. Probably why Michael Jackson was continually having surgeries.

I was diagnosed with discoid and subacute cutaneous lupus in 2006. I'm a 38 year old home builder/ ex-sun worshiper. When I got the news I was like, what am I going to do now. They put me on plaquenil and told me to apply cream to the rash. I tried using different sunblocks, but any prolonged period in the sun would cause a flair. So I quit taking the plaquenil for years. I couldn't enjoy anything outside. Always looking for a shady spot or avoiding activities altogether. Cutaneous lupus can really get you down, but I tell myself it could be worse. After a recent checkup with my rheumatologist I decided to try to do something to at least buy me a little more time in the sun. He suggested I go from the usual 400 mg of plaquenil/day to 600 mg. That freaked me out so here is what I did. I started taking the 400 mg of plaquenil, a multivitamin, fish oil, DHEA (not sure but I don't think ladies should take this one), and most importantly Red Light Therapy. I started everything simultaneously while I had a moderate SCLE flare on both arms and upper lip. Also a discoid lesion by my ear (which never goes away). After 4 days the SCLE rash on my arms had completely disappeared. I mean gone. It's the red light therapy I'm sure of it. Google all the benefits of it. The results for me have been unbelievable. My skin feels alive and healthy again. I actually hung my arm out of the car window the other day ( I usually try to hide my arms). After 20 days my lip is 90% healed. The discoid by my ear looks better than it ever has, although it is still slightly scarred. Your local tanning salon or planet fitness probably have the red light therapy beds. It's like a tanning bed but it uses infrared light instead of uv. I have had 0 negative side affects and my skin is very sensitive to the sun. I don't know if it will work for everyone but for me, I'm ecstatic. I couldn't wait to share the news. Also it's important to use a sunblock with both mexoryl SX and mexoryl XL. Look for it online it's not sold in the US. I got mine on ebay. Vichy is the brand I got. After my arms had totally healed to 0 rash. I put my new sunblock to the test for an entire day of yard work followed by an entire day by the pool. That's right. I said by the freakin pool. Not a single spot of a flare. I feel like a new man. I hope this helps.