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Posted 10/23/2015 3:11 AM (GMT 0)
I am sorry to be posting so much tonight but I guess I am feeling a bit anxious. Can you feel your anxiety coming on? I did today. It first started as an annoyance with a co-worker talking about Halloween when I had a desk load of paper that I needed to get through. I politely explained this to her. Off she went. Then I get a call from the charge nurse asking me to make 2 cards for 2 co-workers that will be leaving on maternity leave/ Ok no problem I can get this done in 20 minutes before I leave, but of course computer is not cooperating. Clock out to finish cards as to not get in trouble for unapproved over time. In the meantime my husband is working lots of overtime and double shifts so he wants dinner ready soon after he arrives home at 4:30 so he can nap before he is off to work again. I get home at 4:00 and today I was going to be late ( thank goodness for take out) Problem diverted. But I can feel the anxiety build now I am sitting here by myself on the computer and happy until the dog barks, phone rings, kids come down stairs or anything else except for peace and quite. I also have noticed that my hands are swelling and my wrists are hurting. Can this irritability be the start to a flare?

Laura
Posted 10/23/2015 1:09 PM (GMT 0)
It may be the start of something if you don't STOP and TAKE CARE of YOURSELF. It's sometimes one of the signs that you are entering, or are in, a time of stress. Stress often can trigger flares.

But if you stop and treat the stress, you can avoid the flare. Take a bubble bath, go to bed early, something.

Also, what meds are you taking? Some can increase the tendency toward stress, esp. prednisone. That doesn't mean you should stop taking it, but it does mean you have to be gentle with yourself.

You can't be acting like you are 20 years old, in perfect health, and out to conquer the world!
Posted 10/24/2015 4:13 AM (GMT 0)
Lynnwood is right. If you don't pace yourself you're going to be in a mess of trouble.

Order a pizza, plop the kids down in front of the TV for a picnic. Put your feet up and rest.

Take out is a godsend for us.
Posted 10/30/2015 3:21 AM (GMT 0)
Lynwood I am on Rayos 5 mg, hydroxychloroquine 400 mg daily, duloxetine 60 mg,
diclofenac 50-100 mg a day, and synthroid .75 mg.

I feel like I have been sleep walking all this week. I have been saying things and seconds later can't remember what I said, not seeing stop lights or stop signs, burnt myself twice different hands while making dinner. Just stuff that is not like me. Crazy week.

I just got results of bloodwork and blood work is still good after a year of symptoms. My SED rate is still high, CRP finally in normal range, ANA positive 1:160 homogenous pattern. I just hope they don't pin this on something that just doesn't seem to fit like HPV-B19. I feel bad wanting a diagnosis just to validate that I am not crazy or lazy.
Posted 10/30/2015 4:03 AM (GMT 0)
I've found out that when my brain is in "pudding" mode I need to rest and de-stress.
Posted 10/30/2015 12:42 PM (GMT 0)
You definitely need to talk to your Drs about this. Most of your medications I am unfamiliar with and so can't make any comments.

If necessary, take them a printout of what you just told us...

I feel like I have been sleep walking all this week. I have been saying things and seconds later can't remember what I said, not seeing stop lights or stop signs, burnt myself twice different hands while making dinner. Just stuff that is not like me.

You may need to have some neuropsych testing to see what is going on with what part of your brain, or to see a neurologist. Your regular Drs should be able to advise you.

Best wishes, I know that kind of stuff is no fun. I quit driving for over 2 years because of similar issues. Please be careful.
Posted 10/31/2015 3:10 AM (GMT 0)
Thank you Lynwood. I see my rheumy next week and will mention the above. I do see a neurologist Had an EEG 2 wks ago and everything was good. MRI showed lesions 6 mos ago. I am scheduled for another one coming up. I have a lot of symptoms but no real butterfly rash. I am a little concern with CNS lupus.
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