How is everyone? Check in!

What's the deal with food & lupus? Are some bad for lupus? I've read to avoid alfalfa sprouts but are there more? Are any foods particularly beneficial?

Thanks Tinkerbee..
Items 1, 2 & 3 relate to me.I'll talk to the rheumatologist about switching to something else.

Joy,

So sorry the Lupus is playing in your guts. I really hated that period of my Lupus -- I had episodes of instant dumping. Worst times were riding in a car somewhere, when without warning I'd get sharp stomach spasms followed almost immediately by the need to vacate. No time to even pull my pants down IF I'd been in a position to do that! Made for some embarrassment and some spectacular messes.

Sounds like a horrid summer for you, sure hope the fall has things looking up!

Hi! I didn't know that our posts are visible for the public to read, but I haven't been on this site for quite some time.

I hope everyone is doing okay. #StrongerTogether

Not a lot of activity on the board, lately. Hoping that means everyone is busy and doing well. I've started a course of physical therapy to try and alleviate worsening pain along my spine and hips. Hoping it will help although it is too soon to see any results, yet. Hard to believe it has been 14 years since my diagnosis. So far, so good. Ups and downs, but I just keep on going!

Hi Fran & BreRose,

Thanks for checking in! It's always nice to hear how other people are doing with their Lupus journeys.

Fran, I make myself go to the gym 3x a week and work out for at least an hour - otherwise my hips, knees, and ankles get so stiff I can hardly move!! Hope the PT helps with your pain, I think it will!

BreRose, Hydroxychloroquine works by slowing the disease progression, and in a lot of cases we patients don't believe it's working until we stop it and find out where we're really at! Glad the prednisone is working for you -- it can give you horrible, physical cravings for sugar and carbs. If you are on it very long try really hard to stick to proteins, veggies, and fruits!

Oh, Bill, so sorry to hear about the loss of your son and the resulting uproar. Stress is so hard on people in general, but when it's compounded by diseases like ours, AND accompanied by aging... oh my gosh, I hope things get easier for you soon.

I was on Cellcept (what I call my miracle drug, it really turned my Lupus on it's head) for about 2 years. I knew the warnings about being out with people, but mostly it was children (and all their colds) that I avoided. I never felt like it was dangerous to go out. However, I do understand having concerns about a sweaty gym.

The gym I use is very small, it only has 4 trainers (usually only 2 of them are working) and isn't open to the public - that is, if you aren't with a trainer you aren't there. Maybe you can find something small that will work for you -- maybe a smaller yoga studio or something that will get you moving?

Thanks for the concern, Fran. I've dealt with chronic depression for about 35 years, so have a lot of tricks up my sleeve! I know that, "This too shall pass". Just hoping for sooner rather than later, ya' know?

Hi All, I have been feeling great! Still taking plaquenil and my lupus antibodies are slowly decreasing. My rheumy thinks (hope, hope) that I have drug induced lupus and it is just taking a long time to subside. Anxiously awaiting retest of my antibodies in November for confirmation. Hope everyone is feeling well and that's why the board has been so quiet. Wishing everyone good health!

Hello, I haven't been around in quite a while, though I should have been.

My diseases are pretty much okay, with the occasional flare. Stress is out the roof. My husband has stage 4 metastatic melanoma. He had brain surgery in June and radiation and is being treated for the rest of the mets that remain (bone, lung, brain).

I'm finding that my physical and mental energy is in the basement. Hard to find ways to stay happy. I am grateful for every day we have together, but it's so hard watching him go through this. We have been together for 30 years - he has been my rock through my own illness.

Anyway, hello strangers ;)

Thank you couchtater <3

Thank you so so much Butterflake. <3