Posted 1/20/2018 6:15 AM (GMT 0)
Hello everyone, wishing you all the best.
Tonight I post about an issue that has been kind of hovering over me for a long time.
When I was being diagnosed for all the baggage I had been carrying around, among the SLE, Sjogren’s,
Addison’s disease, IgA deficiency, hypothyroid....was abnormal liver enzymes.
These enzymes have been living around the perimeter of everything since about 2003.
I was first tested and unltrasounded and told that the good news was they found no cancer, the bad news
that I had fatty liver disease. It was caused by all the prednisone I live on ☹️.
But nothing ever had to be done and I have blood work every so often where the enzymes are up.
Once I had to discontinue the Methotrexate I was on to try control the lupus.
Problem....the enzymes are up often now. My hubby remembered from way back then that I was told that things would be okay for about ten years....I didn’t remember that.
Anyway along with the elevated enzymes I am experianci g other symptoms.
With everything I deal with it’s hard to know exactly what symptom belongs to what, but I am pretty good
at the sorting.
I find that the first thing is really bad fatigue, so bad that it feels like narcolepsy! There are times when I just need to get somewhere warm and soft and lay down. I fall asleep so fast and so hard I barley remember laying down. Funny as sleep is not normally a strong point for me.
Then I find I itch and my skin gets real dry, dehydrated even. My youngest can actually stick to the roof of my mouth so bad it kind of hurts to move it when I wake up. It is absolutely dry, zero moisture.
I drink water like a fish too.
Sometimes I wonder if it’s Sjogren’s...or is this a liver issue.
In the spring of 2016 I learned about ITP. It’s a blood disorder where your platelets drop, and mine dropped out of sight. I ended up on almost a year of high dose prednisone and then when that didn’t work chemo.
Then there is the insomnia....much different than the fatigue sleep. I can go to bed and lay there for hours trying to sleep. Or fall asleep because I am so tired to sleep only for a few minutes and wake up and cannot go back to sleep.
Then there is the nausea. Sometimes it’s so bad that I wake up in the morning I vomit.😧
And I have a terrible time eating. My appetite kind of disappears or if I do eat I end up nauseated again.
There’s some pain then too, it’s on my right side tummy and around to my back.
So I don’t know are these symptoms about liver? I was never really told about symptoms.
Or is it just everything else?
Thanks, Tuffymason