Posted 5/13/2018 5:24 AM (GMT 0)
For those on IVIg, what if any side effects have you had? I just restarted my infusions again. Had my first one on Thursday and woke Friday morning with a wicked headache, so bad that I could not move my head without throwing up. The weird thing was that when I threw up I did not throw up one once of food, it was straight bile, and tons of it. Then the diarrhea started and I was throwing up at the same time, it was horrendous! Then the chills set in, I literally could not get warm, I laid there dressed in sweats, layered in blankets and the heating pad on, freezing. Today I I had the headache and nausea until about 9pm, it seems to be subsiding (I pray to God it is).
When I took IVIg last time I did it over two days, this time they infused me in one day, about 6 hours. I asked them why and they said that’s pretty standard. The clinic has recently changed computer systems so they do not have records on my infusion schedule from last Fall which is most frustrating. Sorry for the long post. I’ve just been so deathly sick I just need some advice if anyone else has been through this or if is totally something out of the norm. I’m going to call my doctor on Monday.