HealingWell
Search Close Search
☰

Muscle twitching?

Support Forums
>
Lupus
✚ New Topic ✚ Reply
❬ ❬ Previous Thread |Next Thread ❭ ❭
Posted 6/15/2007 10:46 AM (GMT 0)
Does anyone get this? I've just really noticed it in the past 2 weeks. I'll be laying on the couch watching t.v. and different parts of my body with "jerk" not violently but very it is uncontrolable. It's just for a breif second but than it will happen somewhere else. I know sometimes when your body is overly tired or you've over used your muscles they can twitch. It doesn't feel like that. It almost feels like I'm going to have a seizure but it doesn't happen. I had a horrible seizure once out of no where but that was 25 years ago. I attributed that to my wild life style at the time. to much partying. It was horrible I felt like a rag doll being thrown around. It's not somthing that you ever forget the feeling of. I'm not sure how long that lasted. probably only a mattered of several seconds. This is the same feeling but it only last about 1 second. Does this happen to anyone else?

thanks

love

carol

Posted 6/15/2007 1:00 PM (GMT 0)
I get the twitching too but I notice it more when I am tired or if I had caffeine. I also get them when I have my "episodes" that my doc suspects are simple complex seizures (or migraines). They are a little different though as the twitching when I'm tired is more like a out of the blue leg kick or something where as the ones I get with my episodes are more like a repetitive twitch. Wow, hard thing to explain.
Posted 6/15/2007 1:10 PM (GMT 0)
Hi bab's yes it is hard to explain. I guess for me it's kind of a fluttering twitch. but even though it can be felt in my leg or arm or chest or where it feels like it effects my whole body and kind of makes me a little metally off balance. Like a spaced out feeling or something. It's prbably just my meds. It's strange the things that I took for granted before now make me question. Maybe I am a hypocondriac?????? redface

love

carol

Posted 6/15/2007 2:27 PM (GMT 0)
Carol, I get some weird twitches or tremors too and they are so hard to explain. I don't think they are like yours though. I get them mostly in my arms and hands. I notice when I get them that my affected arms or hands will feel weak when it happens. It's interesting that you mention meds because for me I think they do play a part in it. When I tried SSRI type anti depressants, I got the tremors a lot and found out it was a rare side effect and then I got even worse side effects and had to quit taking them. Now that I started amitriptyline I've noticed the tremors a little more, but not as bad as when on the other meds. It's frustrating because it's so hard to know if it's the meds causing the symptoms or something else. I can drive myself crazy trying to figure it out. It is definitely worth mentioning to your doctor. And to answer your other question....no, you are not a hypochondriac ;). Take care. Love and hugs
Posted 6/15/2007 5:27 PM (GMT 0)
Hey Carol.  My lupus symptoms began with CNS issues including the jerking, but with plaquenil etc, the jerking subsided for many months.  Lately every time I flare I become a jerk.  I especially notice it when my body is at rest.  Some part (muscle/tendon) must be in motion constantly and it's jerking, not twitching.  It's just like you descibe- hand jerks, then upper leg, head, back- all random and continues for 30 minutes or longer.  I'm seriously considering asking my rheumy for a neurology consult.  Carol, I'm sorry that you've also become a jerk :-)    Many hugs!
Posted 6/15/2007 5:45 PM (GMT 0)
Yep - me too, for at least 10 years off and on now. Welcome to the club. Yeah, the doctors thought I was nuts for years. I wish it were that easy. Not an easy one to explain and you feel crazy just saying it. The neurologist should know exactly what is going on. 8 years my regular doctor said I was either crazy or depressed. Finally went to a neurologist and he said it was "NORMAL" - I had Lupus. Imagine that.

Also get shooting pains, hot spots, cold spots, sensory problems, you name it. I wonder if those nerve blockers they give out would help this. I would ask the doctor. Good news... they are creepy but harmless. The jerking of your arms and legs that cause your sugar in the spoon to fly across the room was different from the twitching that feels like a snake got loose under your skin and just started hopping up and down like crazy. The twitching are fun to watch and make good entertainment though. I prefer it to the flailing arms and legs one. I find it embarrassing at times and hate cleaning things up all the time. You feel like a jerk. Haven't had that one in a while thank you, thank you, thank you. Definitely call the Neuro on that one.

Keep up the humor - feels good - Kristin
Posted 6/16/2007 3:24 AM (GMT 0)
I get twitches and tremors too, so I don't think we are CrAzY lol
Posted 6/16/2007 5:34 AM (GMT 0)
I am a jerk, too. My neuro says it's a part of my encephalopathy (which is pretty similiar to CNS lupus; it is antibodies attacking neurons in the brain, so end result = jerk!)

Carol, you should mention this and any new symptom to you doctor.

xoxo emmie
Posted 6/16/2007 6:09 AM (GMT 0)

Hey everyone, I just got up and wanted to say hi and thank you all for your responding. It feels good not to be the only crazy person around here! LOL. Kris I liked your explination of snakes crawling under the skin and bouncing up and down. it's not the sudden jerky feeling that hurts your back from the jolt. (although I have that too) from PTSD. It's just odd because it seems to make my brain spin when I get this. I'll mention it to my doctor at the next appt:. All though my insurance is being a nightmare at the moment.

love to all

carol

Posted 6/19/2007 6:16 PM (GMT 0)
Carol: I do recall having "oxygen" problems (lost all my teeth from it) around that time and I had a lot of migraines and dizziness. Forgot about that. Do any of yours harden or weaken the muscle? I use to have that too around the same time period. It doesn't do it any more though, just straight twitching now. Maybe the "oxygen problem" is the cause. Makes sense to me, but they have tested me for vasculitis and clots. They don't have an answer. I do know I respond real well to oxygen treatment though. Wish I owned a tank. Felt human again.

Sorry, just thinking out loud. Try Flexeril. It helps with spasms. I kind of think it is a misfiring of the electrical system in the muscles, but this medicine may help or like I said perhaps the nerve blockers. Haven't been able to figure out if it is a spasm or misfiring of some sort. Good luck and please keep me posted. Thanks
Posted 6/19/2007 6:27 PM (GMT 0)
I am getting some fluttering in my mid left side of my back (almost on the side) and it feels really weird. Never affected me there before but its been going off and on since last night. I have no idea what's causing it. Does this sound like a muscle thing? Its just really weird that it would be in that one area.
✚ New Topic ✚ Reply