Ana 1/800 again

Ann,

I am so sorry to hear that you are getting worse. I don't know anything about creatine kinase. Is that the test that indicates you have a neuromuscular disorder? What do the doctors tell you when they give you the results of your tests? I'm afraid that I can't advise you as to what tests you should ask for since your ANA is elevated, but hopefully others here might know. And I do hope you will be honest with your GP about how you are feeling physically as well as emotionally. When you say that you are suicidally depressed that raises a big red flag with me and I think you should talk to your doctor about your depression.

It has been a while since I've seen you post and I've wondered how you are doing. Please take care and let us know what your GP has to say.

Pat

I am sorry things have taken a turn for the worse.  Here is a very basic but informative site about creatine kinase and possible new directions for you to investigate for treatment.  As I understand it, this level is mostly used to diagnose heart and or muscle problems. 

http://www.nlm.nih.gov/medlineplus/ency/article/003503.htm#What%20abnormal%20results%20mean

As far as the high ANA you may simple be autoimmune deficient and may never get a diagnosis more than that.  My mother in law is in the same boat.  While she does have MSK disease (a kidney disease) she also has a sky high ANA and presents signs of both lupus and sarcadosis. She has been seeing one of the best nephrologists on the east coast for almost a year now and he has told her over and over again that many people are simple pegged as autoimmune defiecient when they present severe signs of several AI diseases. 

If you do a few Google searches you can find information by way of trials and studies about elevated creatine kinase levels and lupus.  It seems generally speaking the treatment to lower elevated creatine kinase levels is by way of statins and beta blockers.  From the research I just did it seems that elevated creatine kinase levels mostly exist in muscle inflammation and nervous system disorders.  Your family history would be in tune with that.

I also agree you need to get help ASAP for the depression.  If you are mentally strong and balanced you have a much better chance with your physical health and balance.

Let us know how it goes.

I Ann, I was just wondering what you found out from your doctors appt yesterday. I hope you get some news that will help. I know how depressing it is to feel so bad and no one helps or sometimes it seems like no oe cares. I don't know if you see somone for your depression but if you don't I think you mght want to think about it.
let us know
hugs
carol

just seen my post of 7/5/07 that I wrote that my ANA was 1/88, wrong it was 1/800! Second time that high, Prolactin and another homone raised both in January and February, Magnesium raised, Folate raised, and in such a sick person they just say ah, it can be that raised, quite normal. Well, if it is normal why is it noted as abnormally raised?
As for the ANA being 1/800 for a person so sick how can they consider it a false positive.
I was never told of the benign blood tumor in my lower vertebrae in February and I've been in agony and I just thought it was lack of exercise cos of the neuromusculoar disorder. Of the CK being 294 when it should be between 25 and 150 they do nothing absolutely nothing. I was told by my gp that the neuro was going to do a muscle biopsy and felt he must have forgotten so reminded him, I've heard nothing.
In my FOI It states 'She is known to be a consistant complainer!!!! Wouldnt you be? Please tell me why should I at 54 and considerably intelligent and creative want to be more or less lying horizontal or travelling in a wheelchair? Practically 24/7 and feeling brutal crape to boot. Please tell me would any of you ask is ANYONE actually going to try and DO something for ME!?