Headaches

I've always got headaches and migraines. But ever since I've been diagnosed, they've gotten worst. They're usually pressure/tension headaches that make me feel like my eyes are going to pop out. I usually take tylenol and it helps a little. But there's always those lingering headaches that nothing works and I just wait it out. I've mentioned them to my rheumy before, and she didnt' really say anything about them. And since Tylenol for the most part took care of them. So I didn't really mind. But lately, I've been getting pretty bad headaches and they just won't go away. I even take naps just so I don't have to feel it, but I wake up and the headache is still there.

So at my doc's appointment today and I brought it up again. This time my rheumy prescribed Midrin for my migraines. I haven't needed to use it yet, but I'm hoping it'll work and I can get some relief for when I do get another headache since I get one at least once or twice a week.

The list of medication grows, but hopefully it'll help. I do get to reduce my cellcept too, since my WBC count has been low, and we're not sure if it's from the Lupus being active, or if I'm taking too much cellcept. So we're going to cut back and see if there's any improvement.

Heidi, I'm sorry to hear about the headaches, and I can fully relate. I never had bad headaches until I got lupus and when I get them they are terrible. Your descript ion of them is very similar to mine. They get so bad that I feel like my eyes are literally going to pop out of my head and explode. I had a GP doc put me on amitriptyline because it's supposed to be good for headaches and it also helps me sleep, which I had been having trouble with. I get the headaches less oftem now, but I still get them and wish I had something for relief when they come. I'll be interested to see how the midrin works for you, so let us know after you try it. If you look up lupus headaches on the internet you'll probably find it describes the kind of headaches you are getting. I looked it up and it described almost exactly what my headaches are like. Take care and keep us posted on the new med.

Heidi I get headaches all the time, but this week they have been worse. It drives me crazy. I am tired of them. I have mentioned them to my rheumie and my dr, neither one has said anything about them. So I just keep taking tylenol and hpe and pray that it takes them away.

Hope yours goes away soon.

Connie

Heidi, My doctor told me thursday that the vascular headaches I've been having might be side-effects of CellCept. It's almost laughable. All the meds we take care of to help with this awful disease and we often don't know if the problems we're having are from the disease or the meds we take. I hope you get to the bottom of yours. CellCept is a wonderful drug and made me feel so much better, but the side-effects can be awful. In my case, my kidney function was being compromised. I'm glad the tylenol has helped and hope your white blood count gets back to normal once you decrease your CellCept.