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Someone Please Help!! I'm Scared!!

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Posted 8/24/2007 11:48 PM (GMT 0)
Hi! Everyone I am scared to death I had an MRI of brain and it is showing small dark area in center of brain. Has this happened to any of you?? I've been on Methotrexate.

Hugs!

Cathy

Posted 8/25/2007 12:30 AM (GMT 0)

Cathy I don't know what your MRI means but I wanted to let you know that your in my thoughts and prayers. I hope it's just a shadow!! That does happen sometimes. When do you go to the doctor to get a better explanation? Take care  and lots of hugs.

Kitty

Posted 8/25/2007 1:17 AM (GMT 0)
Hey Cathy!!
DO NOT GET WORKED UP!!! Like Kitty said it could be a shadow!!! The Methotrexate should not have caused anything like that. (from the literture I have read)!! I am sorry I have not called you back yet I will try sometime this weekend. I have been taking my pain pills and sleeping and answering the phone and trying to rest after surgery.
I Love ya Girl!!! We LUPIES have to stay together!!!!!
Nicki
Posted 8/25/2007 2:09 AM (GMT 0)

Hi Cathy, I'm sorry I didn't respond sooner but I was having a problem getting on this site for some reason. I'm really surprised they told you that but gave you know explaination. Like the others said try not to get to upset about it. I think if it were really serious they would have had you come in right away to discuss it. Do you have an appt set up with your doctor yet? I know it's easy for me to say to slow down and take a breath. I'm not real good at taking my ow advice but try to not get to stressed. It won't help and in most cases it will make your lupus worse.

We are all here for you

Keeping you in my thoughts and prayers

carol

Posted 8/25/2007 3:44 AM (GMT 0)
Hi Kathy,
Did you get the reading for your MRI or are you looking at films? Some stuff looks pretty weird on MRIs. I've had head trauma, was stabbed in the temple and my ex had some brain problems, and my son has epilepsy due to a problem in his parietal lobe. I have diffuse atrophy of the brain, a sign of early aging, my brain is twenty years older than it should be. At any rate, I agree with the others about relaxing. Are you functioning all right mentally and intellectually? This might be something you always had since birth. We only use a tenth of our brains. It may be a shadow, nothing wrong at all. I've known people with holes in their brains from drugs and they ended up being fine, you wouldn't know anything was wrong with them. If you are not having some symptoms, then hopefully it will be nothing to worry about. The brain has lots of wrinkles and it is normal as we age for the brain to change, have fewer wrinkles or some atrophy, like I have, but mine is spread out through my brain. The main thing is that you are doing alright and aren't going bonkers and your doc knows and will likely follow up with a more focused MRI on that particular area to check out for sure that it is only a shadow and nothing else. I'm sorry you have this scary thing happen and I know it is really scary when something like that shows up. But don't worry too much because lots of times it's just nothing, like they say, a shadow, that's all. Please let us know what happens and if there is a problem. Best wishes and prayers.
Posted 8/25/2007 4:48 AM (GMT 0)
My doctor called me personally at 5:30pm my time to tell me the news. I see the neurologist on Monday and will have another MRI Wed. am at 7 with contrast to define the edges better. It is on brain stem deep into brain but size of pea at this time. Keep me in your prayers and thanks!
Cathy
Posted 8/25/2007 5:01 AM (GMT 0)
Cathy,

I'm so sorry about your scare, and to get it on a Friday afternoon to boot. I can tell you to try to take it easy this weekend and not worry about it, but I know you'll worry anyway. Just know that we're all thinking about you. It sounds like you have a good doctor and I'm glad you're going to have another MRI on Wednesday. My hubby had a scare earlier this year that was so bad that he got his affairs in order, and today he's as healthy as an ox.

And you can bet you'll be in my prayers!

Love,

Pat
Posted 8/25/2007 5:14 AM (GMT 0)
I am so sorry that you are having to worry about this all weekend!

What you are experiencing is so very hard. Waiting is horrible and our minds race off in all different directions. Not knowing what is going on can be worse than the reality.

You are most definitely in my thoughts and prayers.

Darlene
Posted 8/25/2007 5:29 AM (GMT 0)
Hi Cathy . . . sending you prayers and hugs. No idea at all about anything with the brain . . . but the neuro's are sharp. I hope your appointment goes well next week and that your neuro will reasure you about what the spot is and what that means as far as your health.

Keep us posted!!

Hugs and blessings!
Posted 8/25/2007 3:36 PM (GMT 0)
Cathy, I am sorry that you are going through this and that it has been such a scare for you. Like the others said, it's too bad you don't have more information about it, but I'm glad you are going for another MRI so that hopefully you'll get some more definite answers. Please let us know what you find out. Just try to take it easy this weekend and do some things that you enjoy that will hopefully help you to get your mind off things for a little while. Take care and lots of (((((hugs)))))
Posted 8/25/2007 7:21 PM (GMT 0)
Thank you all for your support and kindness it is greatly appreciated :) I even asked if they were sure its not a lesion that sometimes us lupies or MS patients get but they said no. See I'd had lots of light headedness trouble with balance headaches etc but those are also lupus symptoms so its hard to figure this all out. I figure if we pray and wish hard enough maybe whatever it is will go away!! This week without the MTX I feel horrible!! They are not sure if i will take it next week either.
Hugs!
Cathy
Posted 8/25/2007 7:32 PM (GMT 0)
Hi Cathy, bless your heart. I know you must be really worried. But like you said lots of prayers and possitive thinking. I'm for that idea! When I hard the MRI of my liver and kidney they called and told me I had a mass in my kidney. I said I have a cyst in my kidney that has been there for years are you sure it's not that? They said absolutely it's not a cyst it's so mass. So a week later and more grey hairs I had another scan and low and behold ....................it was the same cyst I've had for years. LOL. Of course I asked for and got plenty of prayers so if it was a mass by the time they checked it again it had turned back into a cyst. I hope the doctor monday can give you some news that will set your mind at ease.
Lifting you up in prayer
love
carol
Posted 8/25/2007 8:04 PM (GMT 0)
Yes Okie I agree with you!! Previous brain MRI's were ok.. Could it be a mistake?? I've been trying to search and see if lupus lesions are dark but no luck...
Hugs!
Cathy
Posted 8/25/2007 10:51 PM (GMT 0)

Cathy - just wanted to say you are in my prayers.  This stuff gets very scary sometimes.  I get freaked out a lot too if there is something not quite right with the major organs.  It is normal.  Until you hear from a doctor and sometimes a second opinion from another doctor, we really don't know what to expect.  The not knowing is the scariest part, I need the feeling I can do something about it.  I am sure you will handle whatever comes your way.  You are still here, and at worst,  they found the cause of your symptoms.  There are a lot of things they can treat, even with the brain. 

I wish you the best and look forward to hearing how it goes - remember we will be here for you.  Hugs - Kristin

 

Posted 8/25/2007 11:17 PM (GMT 0)
Thank you Kristen and all!! I think I am going to put a positive spin on this as I like Positive so I am going to say I'm having 2nd MRI Wed. to rule Out Tumor :) I mean why not they could be wrong
Hugs!
Cathy
Posted 8/26/2007 4:05 AM (GMT 0)
Wow, Cathy, sorry to hear about that pea sized thing. I'm surprised they could see it without contrast. I'm sure with contrast they will be able to tell you much more about it and whether it is something benign and not worry about or something more serious. There are glands and stuff near your brain stem and maybe its just a misreading of something like that. If they find it early that's definitely a good thing, what ever it is. You haven't been putting peas up your nose have you? (tee hee)
Posted 8/26/2007 4:13 AM (GMT 0)
cured4real? That was funny lol Maybe I did as a child and it took that long to show up lol Maybe its just some artifact or malfunctioning MRI. Yeah seen that without contrast
Hugs!
Cathy
Posted 8/26/2007 4:15 AM (GMT 0)
Hi Cathy,
I like your spin. You'd better be careful or all of those presidential candidates will be all over you wanting you to work on their campaigns! Seriously, the place you are in now, "no man's land", is the worst. You are doing the best thing possible: thinking positive and asking others for positive thoughts and prayers.

You can be sure that you've got my positive thoughts and prayers with you. Let us know how things go for you next week and remember how much we are thinking of you!

xoxo emmie
Posted 8/26/2007 5:15 AM (GMT 0)
I have to get regular MRIs or Cat Scans of my brain. I know that without contrast some areas can look shadowed and not really be. It is actually a rather common thing which is why I have to get them with contrast every time. If the MRI still shows a shadow and they have no clue insist on a Cat Scan with contrast before you agree to anything being done. Trust me on this one. Often the Cat scan will show stuff that the MRI can't quite get. Even if it shows something there are a million things it could be so try not to worry right now.
Posted 8/26/2007 5:42 PM (GMT 0)
You guys are super!! What a support group I have!! Emmi that was funny lol You bet I'm not going to settle for just this answer from the other day. I know I'm allergic to CT contrast hopefully the MRI contrast won't bother me either. Hugs and thanks to all!!!
Cathy
Posted 8/27/2007 2:33 AM (GMT 0)
Just a quick note letting you know I'm thinking about you and hope everything turns out ok and they tell you the results soon so you don't have to worry.
Posted 8/27/2007 4:42 AM (GMT 0)
Cathy,
I'm also allergic to the contrast they use with CT scans (I have an allergy to iodine which is why I can't tolerate the contrast). The contrast they use with MRIs is different. I can have it. Hopefully the same is true for you.
xoxo emmie
Posted 8/27/2007 6:40 PM (GMT 0)
Cathy,

I'll be thinking about you this week and will be anxious to hear how your next MRI comes out. I'll check in when I get back in town next week. Hang in there. :)

Pat
Posted 8/27/2007 10:19 PM (GMT 0)
Cathy,
I am new here, but I want you to know you are in my thoughts and prayers! I know things will work out just fine. Like you said - positive thoughts.
Posted 8/28/2007 2:21 PM (GMT 0)
Cathy, I also wanted to let you know you have been in my thoughts and I hope the new MRI shows that there is nothing serious going on. Take care of yourself. ((((Hugs))))
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