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Prednisone ups and downs

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Lupus
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Posted 8/25/2007 1:01 AM (GMT 0)
I finished the prednisone pack that my GP put me on. I felt good on the pack till the last day. The day I finished it I was having horrible pain and fever. The next day it cut by 50% and today it was even a little better. I am so scared that the pain and fevers will come back. I am hoping and praying that it will resolve on it's own without having to go on a regular daily dose of prednisone. Cooler weather should be here in a few days! YEA! I am so ready for summer to be over. Any advice please?

kitty

Posted 8/25/2007 5:18 AM (GMT 0)
Hi Kitty . . .

So sorry you are having such trouble. I hope your respit from pain will last . . . but if it doesn't your doc will know that pred can help if things get really bad. I see you take Plaquenil . . . have you been taking that for several months or did you just start??? Plaq takes up to 6 months to fully get into your system, although it can start helping much sooner. I see that you take Naproxen as an anti-inflam. Only with our doctor's blessings, some of us are encouraged to try different anti-inflams to see which works best. So you might find that naproxen is best for you or it might be motrin (ibuprofen). If you aren't getting relief, find out if you can try different types. Also, I found out that sugar can cause inflamation and I really have noticed that if I have ice cream or some sweet treat before bed, I really do wake up with more inflamation, pain and stiffness.

I hope some of the others will be along with some ideas for you. Be well!!

Blessings!
Posted 8/25/2007 12:09 PM (GMT 0)

Hi alwaysrosie, I have been taking plaquenil for 8 months. It has help a lot with my fatigue and I am not in severe pain like I used to be. I am putting a journal together so I can keep track of my symptoms. When things change so often it's hard to keep track of how bad things are compared to how bad they were before. I hope this makes sense. Also with my journal I am tracking the weather and events in life to see what could cause a flare. And I want to see if symptoms repeat themselves at the same time of the year. I am going on my second year with Lupus. I do have to say it's better than the first. I take the Naproxen in the morning and in the late afternoon. But now the last few days I have to take a tylenol around noon. I see my rheumy in September and maybe he can give me a different anti inflammatory or increase the one I have. And I am due for blood work again too.

kitty

Posted 8/25/2007 3:07 PM (GMT 0)
Hi Kitty, that does tend to happen quite often. Trying to get off of pred. after a flare. It's a slow process and it doesn't always work the first time. All though you said you were feeling a bit better so I would think that is a good sign.
Praying you do well with out the need for daily pred use.
hugs
carol
Posted 8/25/2007 3:20 PM (GMT 0)
Kitty, I really hope you can finish your prednisone taper without feeling too bad. Just make sure if things get too bad that you'll call your rheumy. Keeping the journal is a good idea because if you are like me, you can forget a lot between appointments. I'm looking forward to cooler, dryer weather too. This heat and humidity and rain make my symptoms much worse. Hang in there and keep us posted on how you are doing. Take care
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