anyone with short hair?

hey everyone!! its been a while since i posted..school just started and i have been busy with doctors appointments.

I was wondering how may people in this forum has short hair as opposed to long hair? before i got sick i used to have very long, nice hair. after being in the hospital for so long, pednisone, cellcept etc most of my hair fell out and i had to start over. It was so mortifying. one of things that women take pride in is their hair and i was one of those. i was lucky enough to meet someone who specializes in hair extensions for people with hair loss. I had extensions in my hair for about 5 months and they were great, i had long beautiful hair and the only people who knew were my close friends, family, and boyfriend.

well it was a few days before school started and for some reason i just decided that i wanted to have my real hair back. I took out my extensions and had my friend cut it for me. My hair is so short!! it kind of looks like a boy cut and i still dont know how i feel about it. I really like having my hair back but i still miss having long beautiful hair.

Does anyone else have short hair or have lost a lot of hair due to lupus? Just looking for some support :)


On another note, I had an appointment with my hemotologist yesterday he said he would like to see if it is possible to take my vena cava filter out. he said that they do not know the long term effects of having a filter in for a long period of time because there have never really been any 20 year olds that have the filters in and leave them in for life. I will find out over the next few days whether or not i need to undergo a procedure to remove the filter.

i was also wondering if there was anyone else out there who have a vena cava filter in place to prevent embolisms. Has anyone had a filter in for a long period of time?

I appreaciate everyones support and comments :)

Hi,

I've had to have a short haircut for a long time, because when I grow it long, it falls out more severely.  I don't have an official diagnosis of Lupus, but do have an elevated ANA and some strange blood test numbers (low WBC, etc.).

-Razzle

Gluten Sensitivity, Sulfite Sensitivity, Allergies, Asthma, other stuff

Short hair is great! Styling time is cut in half, you can try out some of the great styling products out there, get some great highlites etc.

My hair was fine and fairly thin to begin with. Lupus flares and cellcept contributed to hair loss. So I definitely have kept my hair short. A good hair cutter is a must! I invested in some good makeup (the mineral kind) to help with the complexion and when going out (which is rare for this grammie, but not rare for you, a young thing). Also, with short hair you can really play up your eyes!

You'll find ways to make the best of it and before long, you'll be loving it! Oh, also I've seen girls wearing big earrings and looking great. (They actually remind me of earrings we used to wear when I was in college many moons ago!)

xoxo emmie
PS Let us know the outcome of your filter--very interesting stuff!

I feel the same way as Hippi. I don't want to let go of my medium to long hair. It's something that I am trying to hold onto. Its thinning though especially around the crowning part of my hair. I don't have bangs but have considered having my hair stylist cut some. She didn't want to last time and I'm scared it will make things look worse. I wish I had enough courage to cut my hair, just the cutting down on the styling time for me would be worth it alone.

Hi, MissCali. I have certainly had a hard time with my hair loss. It seems to happen more to me during times of tapering my prednisone. I used to have long hair down to my waist. It has always been somewhat fine, but it was my "pride and joy" because I grew it while being in my coma (while being fed intraveinously -sp? the good stuff I'd never actually eat!) Earlier this year while tapering, I had a good sized "chunk" come out on the lower right side of my head just below my ear. At the same time, it was shedding from all over, so it really looked a mess. I have a hairdresser that I love. She understands what I go through with my health, so she really spends quality time trying to help my hair. She cut mine even with my jaw line to help mask that hair loss while it regrew. It has since evened up with the rest of my hair, but because my hair has always been fine with NO body in it; there is NO styling it! This style would look nice if I could get the ends to curl under the way they're supposed to. Oh well, my hair seems to get to be a smaller and smaller problem the more I have to deal with from this disease! I hope you can adjust and maybe get a hairdresser to work with you to make it easier on you. Good luck!

PS--I don't know anything about the filter you have to deal with...sorry.

Hi Misscalli!

I, too, have short hair and I go back and forth between short and medium length depending upon how I feel. It is much easier to get ready in the mornings with a shorter cut when I have to get up at 5 AM and look my best all day. Ocean1 is right, a little mousse and you are good to go! I can completely relate to missing my longer hair. I sometimes feel so pudgy looking with my shorter cut from the prednisone weight gain. I think it all depends on how much you want to deal with each day. Hair extensions might be expensive and there is a fair amount of upkeep, I am guessing, but if the longer hair makes you feel better then that is something to seriously consider. I think that a shorter cut looks more professional and can definitely be more stylish than the longer styles. I would not let others opinions get in the way of what is best for your situation, though. I wonder if you could experiment with those long clip-on or comb-like extensions for days you want to "appear" to have longer hair. I have a couple of those myself that I use when I go to a party or a nice dinner with my husband or with friends. (Don't wear one when you fly, however, the bobby pins set off the airport security system and then you have to take it all down. This happened to me when I flew home from the Mayo Clinic a few years ago - it was rather funny, actually. I was in the airport bathroom frantically trying to put it back up and they began boarding my flight. What a day! LOL!) Anyway, I wish you luck and will keep you in my prayers!