National Invisible Chronic Illness Awareness Week

Lynnwood

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Joined : May 2005

Posts : 8160

Posted 8/31/2007 3:30 AM (GMT 0)

I just ran into this online. Some of you might be interested. www.invisibleillness.com September 10 -16 is National Invisible Illness Week

okie

Veteran Member

Joined : Dec 2006

Posts : 2818

Posted 8/31/2007 4:07 AM (GMT 0)

Lynnwood, LOL I love that site. I want that Tshirt too. The 10 things you never say to someone with an invisible illness. My best friend has Lukemia and she has to do infusions every 3 weeks to try to build up her blood. I want to get her one so she can wear it to the hospital. I have a few people that I am going to send this link on too including the pastor.
I'm gonna check it out some more and send the link to some people.
thanks again
hugs
carol

AlwaysRosie

Veteran Member

Joined : Jan 2005

Posts : 8616

Posted 8/31/2007 11:49 AM (GMT 0)

I'm actually laughing Lynnwood . . . I thought it was a joke and then I saw that there really was such a website . . . too funny (and sadly necessary).

dbab

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Joined : Jan 2004

Posts : 4151

Posted 8/31/2007 1:00 PM (GMT 0)

Thanks Lynn!!! Cool stuff

hippimom2

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Joined : Jul 2005

Posts : 5403

Posted 8/31/2007 2:02 PM (GMT 0)

Thanks Lynnwood. I'd like one of those shirts too. I'd also like to get some lupus t-shirts too. I hope this gets at least some coverage or attention. I know that lupus gets very little attention during it's awareness month and it's national day.

sharentrials

Regular Member

Joined : Jul 2007

Posts : 261

Posted 9/1/2007 6:53 PM (GMT 0)

Thanks, Lynnwood. That looks like cool stuff! I'll share that website at my "local" lupus support group meeting this next weekend coming up.

Gagirl1

Regular Member

Joined : Aug 2007

Posts : 31

Posted 9/4/2007 2:09 AM (GMT 0)

I am still laughing about the "No More Casseroles" book. I got tons of chicken casseroles, lasagna, bagged salad and brownies to last forever. Just to think someone even gets that is too funny. I felt guilty and like I was not being appreciative. when I just simply could not eat what was sent.

People around me at the time responded when my "invisible illness" (Lupus/Sjogrens) showed because of high doses of steriods and injections. I has on a heavy dose of prednisone during one bad patch and if I even looked at the casseroles I would start to swell.

Thanks for the link to the web site.

mom46

Veteran Member

Joined : Dec 2004

Posts : 8198

Posted 9/5/2007 12:38 AM (GMT 0)

Tks Lynn,

I really like the site. I think I will give it to the doctors I work for.

Babs

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