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Posted 1/12/2008 7:41 AM (GMT 0)
Hi All. I live just south of Chicago. This is my 3rd winter dealing with my UCTD. And this cold is killing me! I thought at first I was having some sort of flare, but a few days ago our temps were 60's! (so wierd)And I felt better for a day or 2. Anyhow, I spend anytime I can in a hot bath or under the heating blanket. I still am 2xs as stiff in the AM. And having more joint pain through the day than I was. Not to mention the heat is drying my eyes. I think I use eye drops 4 x a day atleast. Just wondering how you seasoned Lupies deal with the change in weather..... Any suggestions?

Melissa

Posted 1/13/2008 12:55 AM (GMT 0)

Hi Snicker!

I know exactly how you feel, the cold weather does the same thing to me. There are times when I get so cold that my whole body hurts.  Here are a few things I do in order to survive.

In the morning I take a hot shower first thing or else it would take me 2 hours to get my body moving. In the winter I wear long underwear under my dress pants to work along with a long sleeve shirt and a heavy cardigan sweater or a sweater under my suit coat. This year I went out an bought a long down coat and it was the best money I have spent in years....lol. At home my house is warmer then most peoples and I still wear sweatsuits and long sleeves in the house. I know this is going to sound really strange but in the winter because I am so cold, my feet are usually like ice so now I go to bed with a hot water bottle filled with the hottest tap water for my feet (not very sexy but my husband likes the fact that I don't put my cold feet on him anymore...lol).

These are just a few things that I do in order to survive the winter. One more thing, everyday I wait with anticipation for the weatherman to say my 3 favorite words.....Hazy, Hot and Humid......lol. I hope some of this has helped.

Keep Warm,

Blubry

Posted 1/13/2008 5:25 AM (GMT 0)
I mellissa, this is actually my first full winter in oklahoma. I spent over 20 years in arizona before that. So I'm kind of learning right along with you. BTW I grew up in michigan city indiana so I know the cold your referring to. I have actually slept with my feet wraped in a heating pad because the cold is so bad it hurts my toes. I have a friend that buyssupport hose and the tight long johns so they don't stick out under her work clothes. She keeps a pair of gloves in her pockets all the time.
I heard the sleeping with a heating blanket actually works better when you put it under you instead of over you. it may help with the muscle aches. Other than that it sounds like you may need to discuss with you doctor some other treatment. You shouldn't have to suffer like this all the time.
I hope you can get some releif soon.
hugs
carol
Posted 1/13/2008 5:38 AM (GMT 0)
I'll make this really short and to the point.... I suffer and live with it.... It's all I can do!  LOL.  I know it's hard to live with the cold.  You get stiff and sore all the time.  Unfortunately, I suffer in the heat too.  So I can't win any time of year.

 

I have raynauds, so I have to make sure my hands and feet are extra protected.  Other than that, I just live with the stiffness and soreness.  I don't take much for pain at all.  A hot bath is always nice!

 

Stay warm!!!

Ginny

Posted 1/13/2008 6:40 AM (GMT 0)
Hey, I'm in the Chicago are as well. That 60 degree stuff was nice but so, so wierd! Anyway, I think the cold here is always a damp cold. I know it makes me more stiff and achey. The humidity in the summer does the same thing.

I have a severe case of Raynauds (even had some sugery to help it). The little instant warm packs can help a lot. I even tuck them into the pockets of my jeans. It does help. With Raynauds, it's important to keep your core body warm and to wear a hat since most of our body heat escapes through our heads.

HTH

emmie
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