london

#well as usual we have crisis after crisis.
Had to leave last accommodation as they had no beds.
came to hotel, no internet connect here or in last place and really felt vulnerable and exposed.
twin had to get in taxi and come over to calm me.
my rage and distress so bad that I rang the prof at the Lupus centre and he said that these kindo rages and mood swings are quite typical and common. Are they?
I just flip and scream abuse and start hitting out.
whether its the extreme exhaustion or something neurolical as we know I have neuro implications I dont know.
also tried to contact a few experts in the photography fields as here in London would be the centre of excellence, re how to do photography being so disabled. No joy, in fact one photography lecturerer at a very big dcollege just slammed the phone down when I answered No, I wasnt a student at the college and no I did not want to do a cdourse. That was after telling him I was in a wheelchair, had a muscle wasting disorder and would like a chat with an expert on how one goes about being creative etc.
also the taxis wouldnt take my wheelchair so at times was sitting ibn cold for over an hour in the hope one would, which did eventually.
I am really shattered at this point
I am here virtually alone. The irish health service toldme yesterday i could have taken an escort with me but they didnt tell me that BEFORE I came. Nor did they tell me how much they would frund me and I was terrified of spending my governments money.
the trip has been fraught.
I am being admitted into a general surgical ward which I am not happy about cos of the autoimmune probs but everyone says its ok but I am not sure.
it is also a mixed ward and I have been raped in the past.
I cannot take any mobile in with me
It just gets better and better!!!
what do you think about the general surgical ward folks, is it ok?
The medical doctors are top of their field but I worry about catching some bug.

I hope you are doing better. I wish I could do more than offer positive thoughts and encouragement.

I just wanted to say, I pray everything gets better for you. Sorry you are having a rough time. God Bless You, Judy

Hi Ann,

   Wow! you have been through the ringer and back! I hope you have better luck this time. I agree with Donna about the surgical ward. It should be safe as far as infections go. Please hang in there and take care. Keep us updated. You are in my thoughts and prayers.

                                             (((Hugs))) Babs