bursitis?

Sorry Lynnwood, Where is your "bursitis"? I had it in my shoulder way before any of the doctoring started. But I really think it was bursitis. It was one shoulder and it was a sharp sudden pain when I'd hit the return on an old fashioned type-writer. It was a doozy to get rid of (the pain) but the doctor told me what to do and it worked (ibuprofen 3x daily for each day until pain stopped and then add a month longer . . . plus certain exercises). I now have pain in my hip which was dx'd as nerve pain . . . but seems like it could also be bursitis. I'm tired of trying to name it. Maybe I'll just call it George !!! LOL I hope you aren't going to pot there Lyn !! Others have talked about increased pain when they are reducing their pred too. Nope . . not a rant . . . just the truth!! Blessings!

ankles & knees....

I'm also worried that with this doc messing with your meds that it is going to throw you into a flare. I don't know anything about bursitis, but I always think people should trust their instincts about what is goin on with their bodies. I just hope things don't keep getting worse for you. I'm sending some positive thoughts your way. Take care of yourself.

Hi Lynn, I'm getting the same treatment from my Rheumy. Last week he pulled me off the plaquenil, imuran and neurontin, 6 days later I've got hives wrapped around my neck, swelling in my hands and pain in hands and feet. He tells me it has nothing to due with stopping the meds. Went to see mu PCP today and he agreed with me, put me back on plaquenil and gave me pred to quiet things down. My rheumy also told me that he thinks I must have fibro because my bloodwork doesn't always reflect lupus.My PCP told me today that specialists like cases to be textbook before giving a definite dx, he said that AI is just something that the medical profession doesn't understand and that most meds are based on trial and error. I wish my rheumy could be as honest and straight forward with me as my PCP. But thank God I have him.

yeah, and now the neuropsych is saying that since my current dr doesn't think i have lupus that I must have some symptoms that are created by some sort of emotional disorder. this sucks. they all suck. sigh.

Previous doctor is very ill with very rare cancer in his heart. I can talk to him but he can't help a lot as his energy is limited and he can't "practice medicine" due to the terms of *his* disability insurance! Not sure yet what I can and can't change, need to consult w/my disability insurance attorney -- may have to keep his guy until the insurance appeal is over & they are paying me again... It's all a tangled mess and I'm not sure I'm even keeping all the details straight! Certainly don't expect you guys to! Thanks for the support,

(((( Lynn )))) you are right, this sucks!!!! I am so sorry you are having to deal with this. I don't understand what makes doctors do this. Hang in there, I pray things get worked out soon!