Low Dose Naltrexone anyone?

Hi--

Just wondered if anyone had any experience with Low Dose Naltrexone.  Some of the information about it seems promising and I've found some links to Mayo. I just wondered if for some of us it might be an alternative to steroids or if it is something you take with steroids. I know you can't take narcotics with it. I didn't know if it was something flaky or something that really is coming on to the scene in a possibly more mainstream way.  Any info or personal accounts would be interesting. I'm trying to avoid going on daily steroids since I'm about two hundred pounds now and craving food in a horrible way.

Thanks in advance. If there is an old thread, if you can refer me that'd be great.

Marji, there have been several discussions about it here and one of our members, canuckgirl, seems to have had good results with it. I am interested in it, but it turns out you have to be off a lot of your regular meds to take it and that made me kind of nervous. There does seem to be a lot of promising results with this med for several illnesses.

Here are the links to some of the discussions here:

https://www.healingwell.com/community/default.aspx?f=29&m=1040737

https://www.healingwell.com/community/default.aspx?f=29&m=1105131

https://www.healingwell.com/community/default.aspx?f=29&m=1046068

Low dose naltrexone is a life saver and anyone considering it should be on it. I have been on it for almost 2 years for cancer but have many friends on it for lupus, crohns, Parkinson's . All are wonderfully happy about being informed about LDN and trying to tell others. My mom is on it for rhuematoid arthritis and my husband takes it as a preventative.

http://www.lowdosenaltrexone.org/

It is safe, non toxic, no side effects and only 1 little pill every night. Since no further convention treatment could possibly save me, I was lucky to have been told about LDN. It has saved my life that's for sure.

So anyone with Lupus or other diseases should think about LDN without any nasty effects. Some doctors don't know about it so are unwilling to prescribe it but we have lists of prescribing doctors to aid those in need. The list is growing to our efforts to educate health professionals about Low dose nalrexone.

Grateful to be here typing this,

Dee


Post edited to remove link. See 4. No advertising or links to advertising

Post Edited By Moderator (AlwaysRosie) : 9/18/2008 6:13:21 PM (GMT-6)

Hi everyone, I just recently read something about LDN and am looking for more info. I pay for three newsletters and on the last one from Dr. Julian Whitaker read LDN has been around for close to 20 years, is very inexpensive (a reason most doctors don't know about it), and was approved by the FDA as an aid for drug and alcohol rehab. Dr Whitaker mentions in his letter an LDN convention which happen just this year. He mentions Fybromialgia, Pancreatic Cancer, among others. I'm looking to understand this because I really trust this guy. He's been fighting the FDA for years. Through him I learned about the FDA fight against DR Bursynski. I do this not for me now but for people I love and to be ready if I ever have to fight some of these horrible diseases. I know if I ever have a problem, Dr Whitaker is one of my many options. Hi mentions a Dr Behari as the spearheader on LDN. Also he mentions the story of a woman who thanks to LDN was spared from a certain death and after she beat the illness she walked to the CA state capital to convince legistators about the importance of promoting LDN. And this is what I'm looking for. The story of such lady.
Hope this info helps.

Thanks Rosie, I've been looking into to LDN and to be completely honest I'm not ready to give up the improvement I've made on my current "cocktail" to try something that doesn't seem to have much specific Lupus trials. I think it's something we should all keep an eye on, but be cautious with. Thanks again.

Thanks Micky, my mom has Ulcerative Colitis and extreme pain and is older and could not tolerate Imuran or MTX and they are at wits end. I forgot about this post but glad to hear it may be an option for gi AI diseases, she gets really bad and just can't tolerate the cancer meds.

mickey138 said...
After Remicade stopped working for me, I joined Dr. Jill Smith's Penn State Hershey Medical Center low dose naltrexone (LDN) clinical trial for adult Crohn's sufferers. After six months of LDN (4.5 mg) therapy I went from taking oxycodone four times a day to taking an occasional Tylenol for minor discomfort. LDN has been a blessing for me.

Mickey,

Very curious about this post. As I understand it, LDN temporarily blocks the effects of opiates like oxycodone. If you were taking oxy four times a day, didn't you immediately go into at least temporary withdrawal as soon as you took your dose of LDN? Everything I've read about LDN states unequivocally that you must stop all opiate meds before beginning it. It sounds like you didn't stop until after being on LDN for a few months. Can you clarify this please?

any new results anyone?

I am preparing to start LDN. I have to stop taking all my other pain meds so weening has been a process. The reason I am optimistic about it helping with fatigue is because I have had partial relief from my fatigue with Talwin and Stadol, both of which are opiate agonist/antagonist drugs. This means they not only deliver opiates, but they also block some of the receptors of opiates in the brain. For some reason, this helps make them more effective FOR ME and some other people than any other form of pain med. From what I understand about LDN, by blocking SOME of the opiate receptors in the brain, it forces the system to generate more endorphins for a limited amount of time. The idea behind LDN is that those endorphins, produced around 2:00-4:00am, will flow through your system the day following the night you take the LDN. I will post back once I get going on it. I am not sure how long it is supposed to take before I will feel how it is working. Weeks or months?

Hey all,
My doc wants to put me on Low dose naltrexone for Fibro.
I have read good things about it but I also have read that it is inexpensive....the prices I have found for it is between $125 to $450 for one month supply. Can anyone tell me where to get it cheaper?
Thanks in advance