Help reading ana results

I am searching for my diagnoses.  Family doc tested twice for Lyme, one borderline the next negative.  Sent to Rheumatologist, he says maybe Lupus.  My ana is not in the normal ratio form so I am not sure what it means. ANA ELISA SCREEN SEE IFA CONFIRMATORY TEST RESULT  -      ANA DILUTION 80 <40-  TITER H ANA PATTERN SPECKLED  -  PATTERN     I have compiled a list of symptoms.  I know, there's a lot of them, some may mean nothing, almost all are cyclic, accumulating over last 5 years, and I also think I may have hypothyroidism (still waiting on blood test results).  Any ideas?   Neurological Symptoms Disorientation Directionally dyslexic Mood swings Word block Vivid dreams Social phobias Occasional obsessive behavior Involuntary reactions to flickering lights Head, Face, and Neck Mouth ulcers Frequent headaches (predominantly right side) Occasional migraines Acne Hair loss Severe jaw pain and locking Increased dental problems Frequent sore throats Occasionally difficulty swallowing Occasional swollen lymph nodes (in neck and behind ears, under armpits) General Weight gain (50 lbs. in 1 year) Bruise easy (like hematoma under skin) Dizziness Hypersomnia Papules on inner thigh Increased allergies Bright red unexplained stretch marks (took a long time to fade) Motion sickness Frequent and long-lasting viruses Severe fatigue Tremor after exercise Dry skin Strange rash on leg Feelings of carpal tunnel Brittle nails and hair Circulatory Heart flutters Chest pain Sporadic low blood sugars Numbness/tingling in last 3 fingers of hands Frequent night sweats (usually 4 out of 7 nights) Flushed feelings usually with low grade fevers Low body temperature (usually 97.6) Increased sensitivity to cold No ½ moons on nails Musculoskeletal Migrating Joint pain Hips (extreme pain that radiates into upper thighs) Hands/fingers w/ swelling and stiffness R elbow R shoulder toes Muscle weakness Muscle aches especially in upper thighs Decrease in muscle mass Shooting pains Muscle twitches sometimes in face Neck stiffness, creaks and cracks Eyes Occasional floaters in eyes Peripheral shadows Spatial difficulties (problems with depth perception) Sensitivity to light Ears Sensitivity to sounds Ear pain Psychological Extreme Depression (suicidal tendencies) Bipolar disorder Brain fog Memory loss Loss of concentration Reproductive Pain during intercourse Clotted menses Lack of sex drive Vaginal dryness Cyclic urinary urgency Vaginal lesions Ultra sensitive skin patches at the same time as lesions (usually on skin of buttock and legs, sometimes on lower arms) Lesions in butt crack Occasional breast tenderness One episode of unexplained lactation Too much testosterone Abdominal pain Digestive Nausea Extreme acid reflux Constipation/diarrhea   Medications Doxycycline 100 mg twice per day for 1 month for suspected Lyme disease Vitamin E 400 IU once per day for hip pain and brittle hair/nails Cymbalta 60 mg once per day for depression Cetirizine HCL (generic Zyrtec) 10 mg once per day for allergies Omeprazole (generic Prilosec) 20 mg once per day for acid reflux Provigil 200 mg once per day (beginning with ½ tablet) for hypersomnia Yasmin 1 daily for birth control/testosterone reduction Clindamyacin topical daily for acne

Hi Bluazure,

 

I'm not sure what your ANA test results mean either. But your symptoms do sound like lupus and/or Fibromyalgia.  You actually have most of the symptoms I have!! I thought I was reading my own medical history .

 

Bright red unexplained stretch marks (took a long time to fade) - that will be from your rapid weight gain.

Severe jaw pain and locking - classic Fibromyalgia symptom.  I had it too.  Very common.

Sporadic low blood sugars - another classic Fibromyalgia problem.  Very common in Fibro.

One episode of unexplained lactation - can be associated with a Pituitary gland issue.

Low body temperature (usually 97.6) - anything between 97 - 99 is considered normal.

 

Your eye symptoms are very familiar to me too.  I get everything you mentioned.  I was diagnosed with something called Amorosis Fugax syndrome - occular migraines.

Your symptoms sound a lot like Fibromyalgia and/or lupus.  I have almost everything you have written down!  It's freaky. LOL.  Lupus and Fibro have a lot of the same symptoms.  The one way of differentiating the two is that with Fibromyalgia, all of your blood tests will be normal.  If you get tests done for your joint pain, and they come back negative, or completely fine (no inflammation), then it's not really joint pain, but pain of the muscles, tendons and ligaments that surround each joint.  That will be Fibromyalgia.  I just learned all about this a few weeks ago!  I was having what I thougt was horrible joint pain.  but a bone scan confirmed that my joints were beautiful!!! I had no inflammation going on whatsoever.  So it's my Fibro that is the culprit these days.

I'd run this list past the gals in the Fibromyalgia forum. 

Ginny 

 

 

Ugh, I am a mess. Yesterday I spent all day in the ER because my jaw locked and i can't open my mouth more that a 1/4 inch. All they ended up telling me is it's a TMJ flare and they can't do anything about it! Very frustrating.

Ginny, I did have x-rays for my bad hip pain and they were clean. Is this the scans you had or was it something more extensive?

Blushladybug, I am currently looking into acidophilus because I am on Doxycycline for 1 month incase it turns out to be LYme disease. So to prevent yeast, I am trying to find a good refridgerated brand. I do think I have hypothyroidism, but my TSH was fine. I just had my T3 and T4 levels tested and am waiting for results. I did not take risperdol, so my unexplained lactation is still unexplained. But this weekend I did speak to someone who has poly cystic ovary syndrome, and this seems to fit too. I also have 2 sisters with this condition, so maybe hypot and/or PCOS and/or Lyme and/or Lupis? I dunno which forum I belong in... Wow, I'm sorry to hear your bipolarism is from PTSD. The only thing I know about mine is it just started over the last 2 or 3 years. Very long cycles so depression seems to be never-ending.

Thanks for your replies, it helps to hear other peoples opinions, because in my opinion, some doctors are just as clueless as us.

I had all of those symptoms plus some for 3 years and thought I was going crazy and even some of my doctors started to make me believe I was. Then one doctor told me to stop taking Yasmin and see if that helped. Seeing that Yasmin was the only consistent thing in my life since my body started to fall to pieces when I was 25. That night I went home and thought I would see what other women had experienced on Yasmin, and for the first time in 3 years I knew I was not crazy, it was like reading my life. I stopped taking Yasmin in December of 2009 and i am grateful I did. Since I have stopped taking it most of almost all of my issues have subsided. Not all of them have passed but that vast majority of them have. My doctor said it will take some time for my body to repair itself again over time, seeing as it took 3 years to get to this state. I still have bad days here or there but they are so few and far between and after what I use to go through the bad days are a cake walk. It has been one of the hardest journeys of my life but my advise would be find good doctor that will listen to you and help re-balance your hormones. There is so much information that you need to read for yourself seeing as you know your own body and what you are feeling better then anyone else and any doctor out there. Talk to your doctor about it, do your own research on Yasmin and make a choice form there. Good luck and I hope the best for you.