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Posted 9/30/2008 12:47 AM (GMT 0)
Well, I'm quite healthy and normal according to my blood work....except that i probably have beta thalassemia minor. he asked me if i wanted to have a lip biopsy done, and I said no...especially if the outcome is going to be the same. He gave me a rx for restasis and evoxac anyway. :-)

He said he didnt think my terrible acid reflux had anything to do with the sjogren's i dont have.

But I'm wondering...should i have had the biopsy done? And i know some of you with SLE also have SjS, how many take evoxac?? I just took a pill an hour ago and im sweating and i had a lot of saliva....which im not used to, so it almost made me vomit from having to swallow so much. Is this normal?
Posted 9/30/2008 2:16 AM (GMT 0)
Hi honor, I don't know what to say about the lip biopsy. Many have had it . . . but I'm not real sure how important it is. about the extra saliva. It will be a great benefit to your teeth. My dental appointments were WAY improved after I started using Salagen to produce more saliva. Lots of members with dry mouth have lost teeth because of it. There are other benefits too . . . our saliva starts the digestion process, so its pretty important. I'm sorry about the sweating. I hope your body does a quick adjustment to the new med. You could start a new topic with the word "Evoxac" in it. Then the members who are familiar with it will see your post. Blessings!
Posted 9/30/2008 2:31 PM (GMT 0)
I use evoxac and love it. It did take some getting used to at first though. I also had the sweats after I would take it and some nausea, but those symptoms went away after about 4-6 weeks. I don't think I could deal very well without it now because of the severity of my dry mouth. I ran out one time and thought I was going to go crazy because of how dry my mouth and eyes were. I don't know how often you are taking it. My rheumy told me I could take it either 2 or 3 times a day. I started out taking it just in the morning and at night because of the sweats. Once my body got used to it, I add a lunch time pill if needed, but mostly I take it just twice a day. You could ask your doc about the dosage if you want to.
Posted 9/30/2008 5:06 PM (GMT 0)
Bunches of going for tests this week.  almost like we planned it yeah

I am glad that you are heathy , and hopefully you will get used to the medication and it won't bother you so much.  but the waiting for that to happen can also be hard.

Please let us know how it goes.  every little thing seems to a good thing to know and learn from.

Hester

Posted 9/30/2008 6:11 PM (GMT 0)
I take evoxac and it is wonderful. I started with 1 pill a day so my body could adjust slowly and took that at night since that is when it was the worst. After 2 weeks I increased to 2x day morning and night. I tried 3 but it was too much so I am sticking with 2x day because it works for me. It can seem to produce a lot of sweating and spit in the beginning but after your body adjusts it will level out and be more normal whatever normal is.
Posted 9/30/2008 7:27 PM (GMT 0)
For the dry mouth, I keep sugarless bubble gum in my mouth all the time. I can't go much more than 30 minutes without it then I have a mouthfull of cotton. otherwise peppermint mints.
Posted 10/1/2008 1:50 AM (GMT 0)
i take the evoxac once a day now. the doc told me to play around with dosage to see how i would need it. im waiting to take it right before i go to bed since im soooo dry overnight and when i wake up, im completely dried up. i definitely am excited about being on it since water never helped, and probably washed away the little bit of saliva i did have. and chewing gum all day tires my jaw.

thanks everyone for chiming in for support and advice.
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