Buzzing/Vibrating

I sure did, I spend time on that board too! Thing is my MRI's have been fine...

Oh yes, I sure get buzzing sensations all over, amongst other things. I get buzzing on the bottom of my feet, sometimes in the arch area, other times right below where my big toe starts, on my face. I also get alot of buzzing on the back of my head. The place where I get the most buzzing is on my neck, like in the area right between the shoulder blades, and then it moves down the side of my spine sometimes. It's weird, I describe it like feeling like I have a TENS unit stuck on the area. I also get alot of nerve pains, sometimes extremely shocking. Lately, which is new for me, i've been getting completely numb in my right cheek. Once, I woke up laying on my back, and my right cheek, and a small part of my outer lips were completely numb, as If I'd just had a novacaine shot at the dentist. It took a few hours, then it went back to normal. Last week, I got up in the morning to get ready, then about 1/2 hour after being up and about, I felt that same area going numb again, though it didn't go completely numb. What happened first was the whole area felt extremely icy-hot, then a little tingly, then it started going numb. I also get these random short shocks of what feels like wet, icy-hot sensations all over my body.

I do have a history of lumbar spine problems and lumbar stenosis, for which I had surgery. I do have alot of scar tissue, which causes problems, but that does not account for my symptoms in my upper body and all these weird random places. Last time I was at my Rheum, I said I just didn't understand why I was getting nerve pain and severe muscle spasms all over my body....and he just said, Oh, it's probably fibromyalgia. But in my gut, I do not think that's what it  is. Not to mention, I've tried Elavil in the past, and am currently on Lyrica (from my PM for my nerve pains). The Elavil never did a thing, except help me sleep. (And when I took it, I did have fatigue and muscle aching, thought not sure about any tender points). The Lyrica does seem to help my nerve pains, for the most part. They are not so severe 24-7, but I have had some exacerbations. But I really have no clue what is causing all this. What I do know, though, is that every time I take steroids, whether it be oral, or epidural steroid injections into my spine.....when the steroids wear off, I get bombarded with all these symptoms very severely.

Wow your symptoms sound like mine. Aside from that I have had muscle twitches ALL OVER my body non stop for 3months. Before the twitching started I had the pains..toothache pains that mainy tend to hit random fingers, ankles, toes, shins, spine. Sometimes for a min sometimes for hours. After a couple wks of onset of the pains the extreme joint cracking started and it is EXTREME. My dr was stunned by this.

Nobody knows what is wrong with me. I have no inflammation. My blood results are good.

So Bay you have been dx with Lupus (sorry if I asked before)

Are there different forms of Lupus? Does it take awhile to show in the blood? All I know is something seems to be attacking my joints/muscles. My EMG was clean (I may ask for another)and MRI clean of lesions. I do have c spine stenosisi but not severe and would have nothing to do w the cracking of my joints and I know the joint cracking is related to whatever is going on in my body.

My pointer finger has been kind of numb for 3 days, it was numb last month for 2 days

Do you think your symptoms are part of lupus? Do you too have extreme joint cracking and twitching?

Sorry for all the questions

But again....yes, I was diagnosed with Lupus. I don't usually have visible inflammation either, but my joints crack like crazy when they don't feel swollen. It seems like every joint in my body cracks, including my sternum.

I also have been getting numbness in some fingers, usually the last 3 (pinky, ring, and middle), most of the time on my right hand. I've also woken up sometimes, while laying on my back, to find either my entire hands or entire arms both completely numb. Has that ever happened to you?

I do know there are different forms of lupus, some are only skin related and I have heard of CNS lupus on here. I have no idea if my lupus is causing all my nerve symptoms, though. I had said to my Rheum that I couldnt' understand why I was getting nerve pains and muscle spasms all over my body, and he just said it's probably fibromyalgia. Somehow, though, I doubt that. I don't seem to have many of the other symptoms of it and he only checked me for tender points about 5 years ago. I did have all sorts of blood tests run, like checking vitamins and minerals and such, but I guess those came back okay. But I've not had any upper body MRI's or EMG's or other kinds of tests done to check into my nerve symptoms. Right now my insurance won't cover it, as its only basic and only covers up to $500/year, which I already met.

I dont know if it's all due to lupus or something else..but I wish I knew. What I can say is that steroids always help my symptoms; and when the steroids wear off, my symptoms get worse and I usually get new symptoms on top of it. It's all just very weird, isn't it? Do you ever feel like you are a voodoo doll or something? I do.....with getting these sudden jolts of pain all over the place.

Hi,

No, I do not get constant twitching all the time. My eye just happens sometimes out of the blue; other than that, it only happens when I have sciatica.

I've been trying to research into my symptoms and I keep coming across MS as one possibility, which I hope it isn't. Although, one of my grandmothers had MS.

Hair thinning and falling out can be lupus related, though it can be related to other conditions as well. Personally, I have had massive hair thinning while in lupus flares and my eyelashes also fall out, though not completely. Now, over the past year or so, I've basically lost the outsides of my eyebrows!

I do have problems in the sun, if I'm out in the sun too long, I start feeling ill and get extremely tired and fatigued. Sometimes this even happens from certain lighting. I have had a malar rash in the past, which is the first time I was suspected of having lupus by a dermatologist. But one does not have to have this rash to have lupus.

My nerve pains are usually short and quick, several seconds, though I've had times where it throbbed and hurt for minutes. Again, I've also had severe sciatica, where sometimes that pain was 24-7. But that was definitely related to a problem in my spine. My finger pains usually occur in short bursts, though it may last for while and happen on & off during the day, sometimes for several days. Then I can go for days without it. I also get severe, sudden, bursts of nerve pains in the tops of my feet, the fronts and backs of my legs, my ankles, and hips.

Yea, I wish I knew what was going on with me, it's just very strange.  I know I should have testing done, but I can't right now. Come to think of it, King....do you also get migraines?

I get migraines, though most of the time I have them without headache; I usually just get all the auras, visual symptoms, smell weird things, and get ear ringing. I also had 2 episodes where I'm not sure if it was a migraine or not. I suddenly felt "weird", very hard to explain. I wasn't exactly dizzy, as in spinning, but I could not focus. I felt sort of out of myself and almost thought I was going to pass out or something. It was not what usually happens with my migraines. I happened to be in school at the time. In the morning, I told a classmate that I suddenly felt strange, not right and as the day went on, it got worse. Then in another class, I was trying to look at my teacher while she was talking (and I was sitting smack in front of her). But I couldnt really focus...I heard talking, but wasn't quite sure what she was saying all the time. Then I heard her ask if I was okay..apparently I had turned white as a ghost and "didn't look right" to them. One of my teachers is also a nurse, so they called her in, she thought something was wrong (they almost called an ambulance). Strange though, she took my blood pressure and it was actually very HIGH, when they all thought  it would be low. It took several hours for me to start feeling better, though not completely better. I still felt a bit "off" the next morning. It was extremely strange and I have no clue if that was a migraine or not.

Sorry I forgot to say that I also have muscle twithes in my hands, behind my eyes, and arms and legs.  I also get charlie horses in my toes and feet alot.

Do you have twitches too