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Why do I always get a rash when I have weeks to wait for an appointment?

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Posted 4/2/2009 10:03 PM (GMT 0)
Typical - I keep getting rashes, but never when I'm due a doctor's appointment. Right, this time I'm going to photograph it to take with me. Slightly embarrassing though as it's on my left breast, much to my partner's amusement as he has to take the photo. The things we have to do!
Posted 4/3/2009 12:16 AM (GMT 0)
Sounds like a good plan alim. Ya . . . you should be all ready for the reveal and when you drop your top, you should be wearing pasties!! Ha haaaa!! Are your cheeks red too?? Are your feeling ill at all? Pain? I hope the photo helps your doc. Keep us posted. blessings!
Posted 4/3/2009 10:50 AM (GMT 0)
Yeah I've been feeling ill on and off for years, but the last year I have felt truly horrendous. My skin does flare and go bright red, especially my cheeks. I have terrible pain in my hands and feet and pins and needles in my neck and shoulders. I've had mouth ulcers and repeated chest infections this year. I'm ANA positive at 1:640 and waiting for the results of 7 other blood test which my rheumatologist requested last month. I've got scarring on my right thigh from a rash earlier this month - several large purple scars. Just wish I knew what was wrong with me so I could deal with it, I'm fed up of being passed from pilar to post.
Posted 4/3/2009 12:13 PM (GMT 0)
Sorry alim, It IS really hard to continue moving forward w/o good support from the doctor end of things. Have you made your "Doctor Cheat Sheet" yet? If not look in Lupus Resources (link at the end of my signature) and search for the post about preparing notes for your doctor appointments. It really is a great help for me. I seem to get into the doctor's office and fall silent. The list helps me recall quickly and with selected words and brief, well thought out, descript ions and questions. You might also consider taking a support person with you. It must be someone who is verbally supportive. It is interesting how much more attention my mom receives at her doctor appointments when I go with her. I was irked at one of her recent doctor appointments because the doctor was SO fast! But mom said that was the most time this doc ever gave her and mom thought it all went really well. She also said that since then the doctor gives is more attentive. HA! She (the doctor) doesn't ME going to every appointment. I had a little too much to say! I can battle for a loved one . . . but not for myself. Anyway . . . I hope your appointment brings you closer to good treatment. The dx is less important than getting good treatment for your symptoms. So I've learned to push more for "the treatment plan" than a dx. I remain in dx limbo with all my issues too. I've been dx'd with lupus and un-dx'd . .. and last year (colonoscopy with biopsies) was told I have Crohn's . . and now GI doc says no. ????? I really don't care . . . I just want to make sure that my issues are properly treated . . . they can call it whatever they want. Keep us posted. Blessings!
Posted 4/4/2009 8:40 PM (GMT 0)
The doctors here in the UK seem to be obsessed with diagnosis - and both my GP and rheumatologist have said to me they won't treat my symptoms until they know what they are dealing with. Twice in the last month I have been in my GPs surgery in tears as I just feel so horrendous and I'm in so much pain, but my GP just said I had to wait for my rheumy appointment. I know things take time but I'm just so fed up of feeling ill it's affecting my whole life. I don't really have a life - I can just about hold it together long enough to go to work, drag myself home, often in tears, and go straight to bed. Weekends I'm mostly sleeping.

I have definately made a load of notes for my next rheumy appointment, but some of the symptoms I have are really hard to describe. Some of the feelings I have aren't really 'pain' they're a strange numbness, sometimes with pins and needles and sometimes like a sharp electric pulse, it certainly doesn't respond to pain killers. I have these strange skin flares where my skin feels really hot to the touch and it goes bright red. I keep having these blisters appear on my skin - I suppose a bit like hives or shingles.

I had 7 other blood test at my last rheumy appointment, so hopefully they will have enough of a profile to start deciding how to treat me. I don't expect a diagnosis, but I hope they would start to help me with my symptoms.
Posted 4/5/2009 1:43 AM (GMT 0)
Sometimes I feel like my body acts like a car...when you take it to the mechanic, it seems to run perfectly fine but as soon as you leave, the issues start right up again! Sorry you are having such a time getting a diagnoses! I pray they will Dx you soon so you can get some much needed relief! Keep us updated and I'll be prayin!!!!
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