Hi to all i am new here but not to lupus

Hi my name is  nona i have had lupus and its many related complications for about 7 years now,i just found out today that the stent that ws placed in my heart about 1 yr ago prematurely i might add i am only 43 is probably closed off i really dont want to whine but i dont know how much more i can take i used to be such a active person and now i have chronic autoimmune hepititis brain inflamation that causes seziures (no driviving anymore) kidney problems the  heart blockages scare the heck out of me!I take cytoxan infussion every 4 weeks remicade infussions every 8 weeks and all the steroids i can stand these meds make me feel very ill i am as immunosuppresed as you can get and its still not enough my family does not understand this disease as much as i have tried to explain i give up!I am just looking for others who understand and after reading some of the posts i know alot of you are suffering as much or more than me I am glad i found a sounding board even though all i did was complain the first time i introduced myself.I hope to find people to talk to before i go off the deep end thanks sooo much for listening.   

                                                                                                                                           nona

Hey Nona! Welcome :). As Judy said, this is a great group...I hope you stick around so we can get to know you better. I completly understand your frustrations as will most people on here will! Keep us updated.

thanks judy and amy for the warm welcome I get stress test mon to see if stent is closed I will keep you updated .

I will stick around it is nice to have someone who understands the frustrations of this disease and treatment thanx agian god bless you guys           

                       nona