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APS and/or PA on top of lupus

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Posted 12/2/2009 8:15 PM (GMT 0)
although knew i had lupus for a few years along with sjorgrens I was also diagnosed with APS and RA today... so I have to provide my mri results to him stating that I have had strokes and he is putting me on coumadin for life UGH...thats something else to worry about anyone else have these??
Posted 12/3/2009 5:50 PM (GMT 0)
Hi Amy,

I have both RA and lupus, so my rheumy says I have "rhupus". I don't think I have APS but I do have some of the symptoms and plan to ask my rheumy about it.

Good luck with everything, I hope that you feel better soon!
JoAnn
Posted 12/3/2009 6:20 PM (GMT 0)
I have APS and lupus. I have two DVT on a roll, and they tested me for APS, and I am positive. I am on warafin for life. I think another member, Ginny, also has APS (if you look @ her signature).
Posted 12/3/2009 8:13 PM (GMT 0)
Hi Amy,

Sorry to hear about the new diagnosis .... I have "rupus" as well... Never heard of APS though. I hope you feel better!

Posted 12/4/2009 1:39 AM (GMT 0)
thanks everyone.. nasalady i always tested negative for Antiphospholipid Antibody Syndrome up until last week... so i thought i was in the home stretch
Posted 12/14/2009 12:22 AM (GMT 0)
I was diagnosed with autoimmune hepatitis in 2007. have been on liver transplant list for 2 years. Then diagnosed with lupus-like/connective tissue disease, ai hemolytic anemia, and APS. Can not take asa or coumadin due tobleeding risk from liver disease, and at risk for strokes. WHAT the...  Meds-cellcept, prednisone,plaquenil, lasix, aldactone and weekly procrit injections...
Posted 12/19/2009 6:44 PM (GMT 0)
I was diagnosed by a hematologist with APS, and can not take asa or coumadin because of underlying autoimmune hepatitis. The fear is stroke, and in my case bleeding. I have had a "brain bleed" in 2005. My advise is live as healthy as you can and one day at a time, For me falling asleep is the biggest problem. I've  been looking for a support group, but have found none. A good theraoist is essential. good luck.
Posted 12/20/2009 1:47 AM (GMT 0)
I occassionally test low positive on antiphospholipid antibodies but not enough to have aps yet I still am on baby asprin just in case
Posted 12/20/2009 6:26 AM (GMT 0)
I tested positive for APS in 2000 when I was also diagnosed with Lupus. I was put on an aspirin daily, but it wasn't enough. I had a stroke in 2002 when I was 28. I've been on coumadin since then. I definitely feel better when my INR is between 3-4. But the target my doctors want me to be between is 2-3.

I've been having a lot of strange symptoms since early september. I had an MRI last Wednesday to see what is going on in my brain. APS symptoms mimick MS in a very big way. I either have MS or my APS is raging. Won't know until next Tuesday when I get my results back.

Living with all this crap non-stop is wearing me out.
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