HealingWell
Search Close Search
☰

New to Forum

Support Forums
>
Lupus
✚ New Topic ✚ Reply
❬ ❬ Previous Thread |Next Thread ❭ ❭
Posted 5/26/2010 6:48 PM (GMT 0)
confused

I have been reading everyone's post for days. Wondering if I should share my problems with anyone. I was diagnosed with Lupus 9 months ago and it seems like my world has fallen apart since then. It was found by accident, I was having alot of stomach problems which resulted in GB being removed. My hair started coming out and was extremely tired. I was diagnosed with B12 def, vit D def, anemia and IBS. I also have asthma and MVP. Recently I was admitted to the hospital for TIA from unknown origin. I have left side facial paralysis and vocal cord paralysis. left side weakness and numbness. I am so distraut about what is going on with me. Not sure what is happening to my body or what I am doing to cause these flares every other week. I have had to go from full time work to prn in a matter of months. Had rheum to check me for Lyme disease last week. I woke up this morning with pain in every joint of my body. At a lost for words. Anyone else have anything similar happen to them?
Posted 5/26/2010 11:09 PM (GMT 0)
Welcome Challenged, This is a great place to find al kinds of support. This is a monster that can attack at an alarming rate and it can be really scary how we seem to change into a totally different person almost overnight. Everyone here is awesome and others will be along to offer their stories support as well. I'm pretty lucky right now, I've found that methotrexate is finaly working t fight the fatigue monster and I'm feeling better then I have in 4 years ad I haven't even been diagnosed yet. Please excuse my typing, just had steroid shots in my hands for joint pan. Take careand best of luckto you.
Posted 5/26/2010 11:28 PM (GMT 0)
Thanks for the response. I started out strong but it is finally catching up to me. I am currently taking Imuran 100mg, Prednisone 60mg daily, Tramadol 50mg, vit d., align, kapidex, protonix, b12 injections monthly,baby aspirin and Vasorectic/HCTZ. but the list continues. I don't think that my symptoms are improving. I am taking Amoxil for recurrent bladder infections.
Posted 5/27/2010 2:23 PM (GMT 0)
Challenged nurse, I also want to welcome you to our little family. Everyone's story is different, symptoms are different, but the same thread runs through everyone's story, and that is how devastating AI diseases can be. You are on an awful lot of prednisone and I just hope that it's helping. The main thing is to have a good rheumy that you can work with together to get your health back under control.

We're here for you even though we can't answer medical questions. As a nurse, you'll be a big asset to our group. Tell us more about yourself! Welcome to our forum.

(((Hugs)))

Pat
Posted 5/27/2010 4:29 PM (GMT 0)
I am 34 years old. I am married to a wonderful man who has been very supportive through this entire thing. I have 2 sons 9 and 14. They are awesome with helping me stay focused and positive through my bad times. It seems lately that, that all i had. I am a RN and have been nursing for almost 10yrs. I am currently enrolled in RN-BS with hopes of obtaining my FNP degree. I have applied for the masters program but I am so afraid that this disease will stop me from concurring my goals. Each time I have a flare it seems to be getting worse and worse. Today I am running a low grade temp and joints are showing me whose boss. I wasn't really having that much problems with my joints until the last couple of months. I really didn't know that much about lupus until it decided to be apart of my life. I am having a hard time staying focused because i stayed tired all the time. I often wonder if my plate is so full to the point I'm having so many flares. My family doesn't quite understand what I'm going through and often look at me like they think I'm pretending. I am struggling to stay as independent as possible but I feel like I'm losing myself to fast.
Posted 5/27/2010 9:20 PM (GMT 0)
Don't try so hard to be a super woman, you may be stressing yorself right inthese constant flares. Im no doctor, I'm no nurse, unless doggy nurse 9 ears ago counts for anything which it shouldn't. But I do know that everytim I start to feel a little better and try to act like super mom and work my but off, it wipes me out so much that my illness roars it's ugly head in the worst way. Do yourself a favor and make time to rest, clear your mind and let you body heal a little. You really do need it. Take care of yourself and feel free to vent to us anytime, we don't mind.
Posted 5/27/2010 9:32 PM (GMT 0)
Thanks puccini, I have taken this time to really recover this time. I felt like I was letting everyone around me down by taking this time off. Thanks for the advice.
Posted 5/27/2010 10:06 PM (GMT 0)
Hi there! Just wanted to welcome you to the Forum! Glad you found us, allthough I am sorry under the circumstances you found us. I am sure you will find this forum to be filled with wonderful supportive friends and hope you stick around!!

Just a thought...have you read the spoon theory before? If not, I would deffinatly google it. Also, have your family read it!!! I found it helped my family understand a little better what I go through on a daily basis and now we refer to things as do you have enough spoons for that!
Posted 5/27/2010 10:17 PM (GMT 0)
I sure did read it and felt it was heart founding. I sent out to some of my family members already. Thanks for listening.
✚ New Topic ✚ Reply