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Posted 8/24/2010 12:30 AM (GMT 0)

 

Hello, I am a advanced massage studies student who is in a project group studiyng Lupus. Myself along with two other group members have decided to join your message forum in an effort to gain more information and insight on this condition and the effect it has on those who suffer from it.

 

In particular, we would like to know what sort of natural treatments, especially bodywork such as massage therapy, that you have used as well as the outcome of those treatments. Did you find it helpful? Ect......

 

Also , if you haven't tried massage therapy, have you at least thought about it? We will as be linking our flyer to this post for you to learn as well.

 

In the next few days we would like to hear your experiences and also share our knowledge about massage if you so choose. We apprieciate the opportunity to learn from you as well as our classroom setting.

 

Thank you all!

Posted 8/24/2010 3:23 AM (GMT 0)
Hello Student01,

You won't be able to "self-promote" your business here . . . your post will be deleted by the mods.

See forum rules.

But as far as Lupus and Massage . . . I don't have a slam-dunk Lupus dx. Different doctors say Lupus or UCTD, one suspects Crohn's and right now I'm feeling better than I have in the last several years.

But . . . I've had mixed results with massage. If I am flaring (disease active) and have a massage, I might actually end up feeling bruised and beat up . . . but right now massage is YUMMAY !!!

Recently, I receive regular massage from my daughter who is trained in massage. Yeah!

There is a huge range of severity and types of illness among patients with Lupus . . . so each of us is very different. Some have kidney issues, some have lung issues, brain (CNS), and so on . . . lupus can affect most any organ and connective tissue, skin etc. Very large topic.
Posted 8/24/2010 4:21 AM (GMT 0)
I would love to try massage but can't afford to. I have often wondered if it might not help with my back. Ironically we don't even know if my back issues are from the lupus but there are days when I would rather crawl than walk and lay there and cry than crawl. Those days are fewer and fewer as we adjust my meds but truthfully my back is my major pain source in this disease. No one expected RA meds to help my spinal pain but it did. No one expected me to be in the shape I am in either but here I am barely 33 and disabled for more than half my life.
Posted 8/24/2010 12:15 PM (GMT 0)
Hey Redrose! I hear you. I tried lots of things for my back . . . spine doc, pain management, physical thereapy, spinal injections . . . . and that spine doc was talking surgery. eeeeek!!!

I was ready to find a new spine doc and I had a huge wake up from deep inside . . . and decided that I would lose 10 lbs and do my back exercises faithfully while I was losing that weight - before seeking out another doctor . . . . NOT saying this would work for everyone and it was no quick fix . . . but I was shocked at how well my back responded to this. I actually still have plenty of weight to lose . . . . but loosing just 10 lbs and doing those prescribed exercises, faithfully, had a huge benefit for me.

I have herniated disks, degenerating disks, trapped nerves, arthritis in the spine and frequently had back spasms that would simply freeze me in my tracks . . . unable to move. The EMG showed permanent damage from the trapped nerves. My rheumy told me that when the muscles around the belly aren't doing their job, the back suffers horribly. He calls those muscles "God's girdle" . . . . LOL That's what helped me visualize that I had "some" ability to impact the pain on my own.

I couldn't pay for massage either. I had received, on different occasions, gift certificates for massage as Christmas gifts a couple years in a row.

I hope you find some way to get some relief from your back pain. It is wicked for sure. Oddly, laying down was the worst for me . . . the pain down my legs was like a hot knife. I never thought that pain was every going to go away. I really feel for you.

Blessings!
Posted 8/24/2010 1:08 PM (GMT 0)

Thank you for responding to our post AlwaysRosie. We are still students and are actually not a part of any businesses yet, the flyer spoke of is just an educational handout that explains how massage is an alternative medicine that can benefit Lupus patients.

I did read that massage can make someone worse if it is done during a flare up, and should be done between flare ups.

from what I have learned so far people with lupus may experience, joint pain, high stress, edema, muscle pain, fatigue and other symptoms that vary person to person. what do you see most people experiencing with lupus?

redrose77 I'm glad ur is doing a little better. concerning your back, massage could reduce muscle pain & tightness, increase circulation to the area, and break up scar tissue. muscle tightness and binding can cause a great deal of pain. but wreathe massage could benefit or not depends on what’s wrong with you back, note that if you are in Washington or Florida you insurance may cover massage.
Posted 8/24/2010 1:09 PM (GMT 0)

AlwaysRosie said...
Hello Student01,

You won't be able to "self-promote" your business here . . . your post will be deleted by the mods.

See forum rules.

But as far as Lupus and Massage . . . I don't have a slam-dunk Lupus dx. Different doctors say Lupus or UCTD, one suspects Crohn's and right now I'm feeling better than I have in the last several years.

But . . . I've had mixed results with massage. If I am flaring (disease active) and have a massage, I might actually end up feeling bruised and beat up . . . but right now massage is YUMMAY !!!

Recently, I receive regular massage from my daughter who is trained in massage. Yeah!

There is a huge range of severity and types of illness among patients with Lupus . . . so each of us is very different. Some have kidney issues, some have lung issues, brain (CNS), and so on . . . lupus can affect most any organ and connective tissue, skin etc. Very large topic.

Hello AlwaysRosie,  

Thank you for your post.  What type of modalities does your daughter use with your condition and which are most helpful?  Also, does she use any aromatherapy?  How long do the sessions usually last?  BTW, I am not licensed yet, as I said I am a student so this post is not to self-promote a business, however, to gain insight.

Posted 8/25/2010 11:32 AM (GMT 0)

student 03 said...

Thank you for responding to our post AlwaysRosie. We are still students and are actually not a part of any businesses yet, the flyer spoke of is just an educational handout that explains how massage is an alternative medicine that can benefit Lupus patients.

I did read that massage can make someone worse if it is done during a flare up, and should be done between flare ups.

from what I have learned so far people with lupus may experience, joint pain, high stress, edema, muscle pain, fatigue and other symptoms that vary person to person. what do you see most people experiencing with lupus?

redrose77 I'm glad ur is doing a little better. concerning your back, massage could reduce muscle pain & tightness, increase circulation to the area, and break up scar tissue. muscle tightness and binding can cause a great deal of pain. but wreathe massage could benefit or not depends on what’s wrong with you back, note that if you are in Washington or Florida you insurance may cover massage.

Good points and questions Student03.

 

redrose77, I just wanted to add that, with your doctor's approval, you might check out your local massage school for massage as they may offer a supervised student clinic at a lower price.  In addition to doctor's referral, you might want to talk with your pharmacist to make sure that none of the meds you are taking could be interacting negatively and exacerbating your symptoms.  Hoping you find additional relief.

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