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Posted 4/30/2011 12:54 AM (GMT 0)
   

        Hello everyone,  I posted earlier today I am new here and just wanted to say hi, but now I would like to vent about what I have been feeling for the last several weeks. I have had the worst fatigue imaginable, I have had muscle pain and joint pain especially in my hands and wrists, but it has moved to my hips and ankles as well and lower back. I feel like I have had a bad case of the flu or something. I was walking everyday for the last several months and thought I was getting stronger but all of a sudden I felt like I was hit by a brick wall, I just started hurting all over and my muscle tone (which I thought was improving) feels like jelly again. I just can't seem to tone up anymore, does anyone else have this problem with muscles?

      I also suffer from complex migraines and headaches just about everyday, I have had double vision, vertigo, numbness, tingling sensations and balance issues. I was wondering if anyone would be willing to share there lupus symptoms and besides medicines what has helped you cope with the daily pains and other issues. I forgot to mention I also have the malar rash, and I am extremely photosensitive, I break out in rashes from the sun and they itch like crazy. 

Posted 4/30/2011 3:03 AM (GMT 0)
Hey angel, you have to excuse me I'm an old bie but I havn't been around in awhile so I'm not really up to speed with everyone. It's sounds like a typical nasty flare to me. Are you walking outside? If so it's probably not a good idea. also if you are hitting a brick wall it's your body telling you to stop. You need to take a break. Give yourself permission to not exercise or be out in the sun or even do the dishes. You should probably discuss it with your doctor. (rheumy) many times they will either put you on or bump up your steroids to help you get past the inflamation. Your body is stronger with all the effort you have put into it. Hopefully your flare won't last as long but your gonna hit brick walls maybe a lot of them maybe not so many. Feeling like you have the flu is typical for lupus. muscle aches photosenthesis.
Just take a break be good to yourself. Be proud of what you have accomplished. when you are better go back to your exercise program. It's true what they say use it or lose it. Butyou really need to get with your doctor and see what they can do about the flare your going thru right night. You might try some heat and cold alternating on your joints. Somepeople use aveeno oatmeal bar for the rash. Avon has oatmeal body lotion too. Hang in there
Sending prayers and possitive thoughts your way.
carol
Posted 4/30/2011 3:02 PM (GMT 0)
Have you had a complete metabolic work up lately. Not saying that you cannot be in a nice lupus flare but that it could be something else as well. Some things to look for that could also cause those symptoms is B-12, iron, and Vitamin D. I had an issue with all three of those and each one, before detected, caused extreme fatigue, major fog, balance issues, aggitation, and irritability to name a few.
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