Took three years for diagnose and was just told have MCTD

This forum is very helpful. Last year I was told that I have Multiple Myeloma and had to go to an Oncologist. He told me that I did not have it and that I have Reactive Polycolonalhypergammaglobulinemia and antibodies to MCTD. The Rheumy did not care to hear that. My ANA was negative so in her eyes nothing was wrong with me. She is the one who told me that I had Multiple Myeloma. Yesterday the Oncologist told me that he was taking the position of a Rheumatologist to tell me that I do have MCTD. A month ago I was having fever for no reason, I get tired very easy and I have lost weight. This all started two years ago. It felt like there was something swollen at the lower right of my stomach. Went to the doctor they found nothing, but I was anemic severely. A few months later I started having severe pain and was rushed to the ER and was told that I had kidney disease or Multiple Myeloma. The MM was ruled out by specialist. My kidney begin to get better and I begin to feel better. Months later I start experiencing Raynaud's, then pains in my joints, especially fingers and hip. I begin to feel better. It comes and goes, I can feel great for weeks or months and then suddenly I begin to feel sick, tired etc. I have a new primary so he will be looking over the records from the Oncologist and we will go from there. Have anyone experience this, because it has taken a few years to find out what's wrong with me. I have been to over six different doctors to find out what was wrong with me and most scratched their head.

Thanks Bill, I'm hoping to get a new Rheumatologist after my primary care doctor look over the records.

I am nearly 5 years in, still with a diagnosis of UCTD.  Been taking Plaquenil for 3 years (with Pred for flares)- which has been a big  help, but I'm still nowhere close to being the person I was before it all began.  It's been an exhausting and frustrating time - and I know there are many who have traveled the same road.  I've quit working and given up many of my energy consuming hobbies and projects, and lost friends to the fatigue and pain that make it hard to keep up with the simplest activities.  Sometimes phone calls require too much energy.

It is frustrating to see the rheumy for 15 min. every 3 months.  If you don't appear with severe symptoms on that day, it seems all the other days of feeling exhausted, fluish, feverish, and  in too much pain to climb the stairs or make the bed,  just don't count.  That said, I do remain grateful that I haven't had serious problems with organ involvement. 

Angelina - glad you have your dx and the support of your family.  Embracenews - good luck to you - I hope you will find doctors who have the skills to sort things out.....soon!