Dissability Allowance

I live in england and i know things might be different but is lupus considered a disabilty and is it possibly to get some sort of benifit for this as i applied for something called disabilty living allowance and i was turned down i wrote all my bad points and how i actually do need help with so much things by my mum and yet i still go turned down so i appeal and also sent of an upto date prescription detailing all my meds i wating for a reply should i be getting this or am i wasting my time there is alcholics in this country that get away with everything and they get it because they was supposed to have been born with that addiction bull**** (excuse my french) but its true and they take up the money that people with true disabilitys have. So  am i right by appyling or just being silly??

Thanks

Does anyone with lupus get some benifit whatever kind?

Do you think i Shoud be getting this?

 

Hello Miss Lupus:

Here in the US lupus suffers can and do receive disability. Usually, they are denied the first time and have to file an appeal. I can honestly say that it took me almost 4 years to get my disability. I had to hire an attorney and had a hearing before a judge.

I won my case and was paid back pay, like I said tho it was almost four years before I received any money. Some folks are approved the first time and others have to file appeals. Here in the US you need your Dr stating that you are disabled. No two lupus suffers have the same type of issues. Lupus is the face of 1,000, so they say.

We have members who work and are not on disability and others who are on disability. Lupus varies from person to person. Some have very mild cases, and others like me, are very ill I have had lupus for 23 years but I didn't get a formal diagnosis until 2001, it took them 14 years to say yes I have it and start to treat it.

I truly believe that them not treating me sooner has made me so much sicker. I have taken all the immuno suppressant drugs except gold injections. I am currently taking Benylsta. I have been on high dose steroids for over 11 years now. It helps me so much, but the side effects have done terrible things to me.

I have other major health issues that can be tied to my lupus. I have heart, lung, joints, skin, GI, blood issues with my lupus. I also have RA, Fibro, pulmonary hypertension, Gastroparsis, osteoporosis severely, central and obstructive sleep apena, mylodysplastic syndrome, and cateracts. I also have sticky blood and am on blood thinners for the rest of my life do to having several blood clots. i am on oxygen 24/7, I get blood transfusions all the time too. I am so immuno suppressed I can't fight off infections and in the past year and half I've nearly died several times.

So I am classified as a severe case of lupus, but not everyone turns out to be that way. Many folks have mild symptoms and can work full time and have families. Lupus IS NOT a death sentence, some are far sicker than others, but if you're treated, take your meds, get some exercise, have a healthy diet, and control your stress you may find lupus isn't so bad after all.

I know you have been very worried about what's gonna happen with you. Try to remember that stress can cause us to flare. If you cannot hold a job, then yes I would say try to get disability. If your system is like ours in needing your Dr to say your disabled, then have a heart to heart with them.

If I can answer any questions about lupus, just please feel free to ask. All the folks here are very supportive. I wish you well and keep us posted on how you are doing.

Hugs,
Barbara

If you were in the USA you would qualify for disability most likely.

Im starting to not really whats money going to do if im not in good health i really dont feel like i need to care i have a bad case but am not to care as long as i have great health my fiance has always said he will take care of me and my mum helps now and then so i dont think im losing out but il just wait to see what happens if i get refused this time then i dont care il give up

Danielle