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Posted 10/22/2013 8:43 PM (GMT 0)
Hi again,

I am experiencing body jerks. If I have a drink in my hand my body jerks and the drink I am holding, coffee, water, etc. goes all over me and my computer.

Do any of you experience this type of symptom. Last night I got up to go to the bathroom and when I came back to bed I was freezing cold. I put on a pair of socks and a shirt over my nightgown. I have never

Also when out of the house shopping my ankles start to swell.

Did any of you experience this type of symptom.

Twinks,
Posted 10/22/2013 10:43 PM (GMT 0)
I have body jerking but it's very slight compared to you. I was told by a neurologist it was benign essential tremors. I believe it is more than that though.

I get sudden body temperture changes too. Most of the time I'm too hot.

My ankles have been swelling for years when I'm on them too long. I take lasix to reduce the swelling.

Lupus sure does love to play around with our bodies. Sigh....
Posted 10/23/2013 4:16 PM (GMT 0)
I have this but it is diagnosed as myoclonus. I never thought that it might be related to lupus. Two different neurologist confirmed it as myoclonus, but one said it was not a big deal because myoclonus happens to most people when they are tired. I think it is a big deal when I am going through my regular day and I start jerking! I've also noticed that it is worst when I have flare ups (increased antibodies). Based on this post, I'm starting to think it is not a coincidence.
Posted 10/30/2013 9:43 PM (GMT 0)
I find these jerks occur more when I am tired. Lately I am tired all the time. It is most embarrasing when in a room of people and all of a sudden you have a big jerk. In the morning while having my coffee my hand will jerk so much that I spill my coffee all down my pajamas and boy is it hot when landing.
I am going to look into myoclonus and see how that figures in to my jerks.

Thank you for your replies.

Carolyn
Posted 11/5/2013 1:59 AM (GMT 0)
I've been "suffering" with body spasms for years and was only diagnosed with lupus this year.
I like the paper ball syndrome where the spasm hits and my body curls into a ball and then when
it passes it straightens out. The worst I had is when it lasted for about 3 hours and the muscle
relaxers didn't touch it. Good luck with yours and hope you find help.
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