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Brain demyelination from SLE damage

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Posted 11/28/2013 3:49 AM (GMT 0)
The Neuro doc thinks the demyelination that shows on my Brain Scan is from SLE. But now I am wondering what these symptoms I have had a month ago are from. But I guess that numbness, headaches, and weakness can all be from Lupus affecting the brain. I never thought it would do so much damage. Just surprised----altho this m/b something else down the road, if more demyel. shows.

Have any of you heard of this or have it yourself and what has happened?

Posted 11/28/2013 4:04 AM (GMT 0)
I've never heard of demyelination being related to Lupus (only heard of it associated with MS), but when I do a search on "demyelination lupus" a few things do come up.

I guess they would treat it in a similar way to how they treat it in MS?

Sorry I can't be of more help.
Posted 11/28/2013 7:34 AM (GMT 0)
I knew SLE could play around in your brain but never heard of that.
What does he have planned for you treatment wise?
Posted 11/29/2013 4:34 AM (GMT 0)
Did not know that demyelination was associated with SLE but apparently it is. NIH article on the subject below.

http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2077679/

Bill
Posted 11/29/2013 4:53 AM (GMT 0)
I only got to talk to the Neurologist for a short time while he was doing an EMG test on me. And I will not see him again to discuss results until mid- January. So it is just a lot of waiting for now and not many answers.

I have a list of questions and will bring my daughter along so that she can ask even more and help me to remember the answers!!
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