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Posted 12/6/2013 11:36 PM (GMT 0)
 

Hi Everyone,

      I just found out that my Rheumatologist, who I love and respect, is leaving the area.  Did not hear it from her, but from another patient of hers.  This will be my fifth change in providers since I was diagnosed in 1997.  I live in a rural area that is having difficulty keeping doctors.  The closest large city is 4 hours away!   I found out a month ago that the Cardiologist that I was seeing is also leaving the area.  So needless to say, I am frustrated.  The only other Rheumatologist works with my current doc, but only works half time.  I am sure they are actively seeking someone to come up here, either through filling in temporarily or coming up monthly from the more metropolitan areas on a regular basis to see patients.  I am feeling untethered.  I had my original Rheumatologist for ten years.  His passing left a huge hole in my life and the life of others.  It's hard enough managing our Lupus without so many changes and uncertainties with providers.  I do have an appointment with my current Rheumatologist next Friday, so hopefully she will fill me in on all of the details.  Thanks for listening.  I just had to get this off of my chest. 

Love,

Laura

Posted 12/7/2013 1:30 AM (GMT 0)
Sorry to hear you've got another change happening.
I have to travel 45 minutes to the biggest city near me to see my Rheumy. He also comes the same distance two days a week.
Posted 12/7/2013 2:24 AM (GMT 0)
I understand your pain. My first rheumy, who was king of the world as far as I was concerned, unfortunately died too early. (Early 50's) I haven't yet found anyone nearly as good, and doubt that I ever will. He was the only Dr I've ever found that said "You can feel better" in a way that made me believe it was possible.

I am hoping for the best for you - maybe this Dr has some transition plan in place that will ease your worries.

Thanks for letting us know you are hurting tonight.
Posted 12/8/2013 6:46 AM (GMT 0)
Laura:

Sorry to hear that your Rheumy is moving on and you'll have to find another one. It sounds like it's going to be a difficult journey living so far away from the nearest big city. However, you haven't spoke with your Rheumy yet, maybe she has a game plan set up for you. Try not to worry to much as you know it will set off a flare.

I understand the feelings that come with changing Doctors. With the military doctors when we were still on active duty we moved every 4 years so I changed that often. Now, we stay in one place all the time but my doctors move every 4 years. It's the pits because I get them trained and then have to start all over again LOL.

I hope that your Rheumy has someone in mind for you and I hope all goes well and you like your new Rheumy and Cardiologist.

How are your parents doing? I hope that your Dad is doing all right. Hang in there and come and vent anytime.

Hugs,
Barbara
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