Hello everyone,
My 17yr dtr is the one diagosed with this rear form of lupus called panniculitis. The lesions firms showed up right before or around her 16th birthday. The dr's original dx was lipoma, then cellulitis, then erythema nodosum when she had a bad flare in August 2013 when she had soar throat, fever, and the round lumps to her back buttocks arms and legs. The lesions resolved by Oct to Dec 2013. Then 1 lesion showed up the size of a nickle this January and my youngest dtr punched her there and now it has grown. The lesion is no longer round as it was before it is flat and bruised looking. She was out on plaquenil as the first choice but she could not tolerate the generic brand as she had vision changes. So, now she is on dapsone 25mg but I am not sure if she is tolerating this medication either at this time. She is having a fever of 103.9 f, chills, nausea, and dizziness the last couple of days. But I wanted to share a website came across while trying to look for alternative herbal/natural ways to control these outbreaks and i actually bought her some pills but it does not seem to be for Lupus panniculitis. But can be for SLE, discoid and 2 other types of lupus not panniculits. Here is the website ---shop.merryclinic.com --- I hope this helps some. If anyone finds something that may work for my dtr that is more herbal or natural please reply to
[email protected] or here..
Does Anyone here with lupus panniculitis get random fevers?
Thank you