the sun

hello fellow lupies, it has been some time since I posted, it is good to be back with those who know what I know, sometimes it gets so lonely because people just don't understand. I am having a terrible time with sun.
I can hardly believe it is as bad as it is. If I spend time outside on a sunny day, even staying in the shade, and with my UV hat and coat, the next day I cannot function or even get out of bed really. My face and skin is burning hot. My cheeks are hot and red. It feels like I have the flu. It scares me as how does one live without going outside? Everyone is outside, I can't imagine living alone inside all by myself for the rest of my life. Anybody have this hard of a time in the sun? Is there anything I can do to be able to go outside safely or medication that can help? Good to be back, thanks so much, Sandra

I'm very sensitive to the sun too.
I use sunscreen, uv hat, uv shirt, gloves, heavy jeans, and tennis shoes.
I buy all of my clothes from coolibar.com. They're expensive but worth it to be able to spend some time outside.
I stay inside during the worse part of the day. If in stores or outside I never take my hat or gloves off. Fluorescent lighting is just as bad as sunlight for me.
I also have blackout curtains on my windows and use LED lighting in my house.

I spent yesterday outside too long on a girls day out with my niece. Maybe five hours of UV exposure total (covered up of course). I came back in hurting all over, burning up, swollen, and terrible peticula on my legs. Still feel terrible today. :-(

It's hard to live in the shade/dark. I feel like Dracula....The light! The light!