Posted 12/20/2014 1:35 AM (GMT 0)
Before Lupus, I worked for years in a fast-moving, high-tech job with tight deadlines and never had any kinds of anxiety issues. Now it seems like it pops up at the drop of a hat for such silly things as a cloudy day. Whether Lupus triggers the anxiety or if they are part & parcel of the same thing I have no idea...end up with excruciating body pain, maybe in joints, maybe muscles, maybe headache, who knows what. Maybe Fibro plays a part, they say I have that as well but who can tell the difference? lol
Anyway, from what I know it sounds like you are being treated the right way -- or at least I haven't heard of any alternatives that I can't think of that might help you. Is there anything that you can think of that might trigger these episodes? Stress at work, seasonal affective disorder (I have a horrid time mid-Nov to mid-Jan), family events, anything? Changes in exercise or eating?
I'm surprised to hear they are keeping you on Cellcept while trying the Benlysta - most folks on here who have tried Benlysta seem to have been taken off the 3 (Imuran,Cellcept,MTX) during the Benlysta infusions.
Sorry not to be of more help, keep in touch.