Posted 1/16/2015 5:38 AM (GMT 0)
Thanks Chart and Joy for your support. My cat is a strange one I will tell you. I can see how badly she wants to be snuggled and held by me. She's just so afraid of getting hurt I think. I'm hoping and praying that in several more month she'll be sitting on my lap.
Well, I just wanted to sign in quickly and let you all know that I my not be around a lot for the next couple of weeks. The dapsone that the doctor is giving to me to treat my lupus profundus can cause some serious side effect. I'm having serious issues with SEVERE anemia right now. Apparently, the dapsone breaks down your red blood cells. Plus with my leukemia my bone marrow isn't making me enough red blood cells to move around and carry oxygen for me.
My lips are slightly blue, which I was told could possibly happen. I saw my Cardiologist on Wednesday and he said that he could see and hear that I wasn't doing well. He can hear a rub next to my heart. The Echo is showing that I've got fluid building up in between the pericardium sac and my heart. Needless, to say I'm having some serious chest pain from it. He spoke with my Rheumy and we've upped my steroids to 35mgs daily for now. Will see how I feel next week, plus my profundus is breaking out everywhere.
Later today I'll be going in for steroid and pain medication to be injected into my SI joints in my back on both the left and right sides. My back is hurting me so badly I can barely move and I just want relief period. I'M SICK OF ALL OF THIS. I really don't know how many more "issues" I can handle I swear it.
My daughter is sitting in Hawaii sending me all these beautiful photos of the most beautiful water I've ever seen and I'm sitting here hurting like heck cause its cold outside. Go figure right, I've always wanted to go to Hawaii or Figi and I know I'll NEVER be able to go there. Hubby won't allow me to fly anymore after my last flight home. I know we can't drive to Hawaii or Figi LOL. Riding on a cruise ship would be a HUGE mistake for someone like me. so I'll just have to enjoy her photos and dreams that I'm there.
Well, I need to be on the road by 7:00 to get these injections done. Hubby, went to bed at 8pm tonight so I'm guessing he'll be getting up soon LOL. I hope you all have a good weekend and low pain days. Take care and thanks for your support, it's greatly appreciate.
Hugs,
Barbara