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Should I be in hospital?

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Posted 1/19/2015 1:08 AM (GMT 0)
I have been very sick for months now. It started with bad chest pains and shortness of breath every now and then. As the days go on I feel worse and worse. My stomach is bothering me now to the point that I hate to eat. I have lost over 10 pounds in a couple months, now I'm under 90. I have terrible shortness of breath if I so much as walk around my house for couple minutes I have to sit down. I literally feel like I'm going to die and my partner is afraid that's what's it going to come to. I go to the ER's and they don't bat an eyelash when I say I have diagnosed lupus. My primary is never in the office anymore and while she has tried to help she seems at a lost. My rheumy is hard to get ahold of and when I finally had an appointment he didn't seem all that concerned. Am I missing something? I thought lupus was supposed to be a serious disease? People are acting like I have a cold. The last ER doc looked at me and said "your healthy" this was last week.

Does this sound like a flair up to anyone? I'm tired of feeling this way I can't do anything anymore. I feel like I'm not going to be around much longer and honestly with how my life is now maybe ultimately that would be best.
Posted 1/19/2015 2:22 AM (GMT 0)
You need to see a doctor who cares more about you.
If you go to the ER and tell them you're having chest pains and shortness of breath they must check you out throughly.
Do you have a lung doctor, heart doctor, or gastric doctor? You may need to expand your specialists you see.

My brother was just hospitalized for ten days with pancretitis and bowel blockage. He kept complaining for several months to his doctor of stomach pains and couldn't eat right. He lost over a hundred pounds before we convinced him to go on to the ER.
Posted 1/19/2015 2:25 AM (GMT 0)
It doesn't sound like you are healthy, very few adults can manage to be healthy at that low of a weight. You need to figure out who can help with the stomach issues so you can get back to eating.

Your last post you were doing some pulmonary tests, did that come back with anything to help you?

What medications are you on, how long have you been on them, what symptoms do you have that are not being controlled? Do you need to consult another primary care dr or rheumy?

Do you have a therapist or psychiatrist? It sounds like you might need some help dealing with what is going on and figuring out who can help...this disease can lower our spirits to the point of not seeing clearly to find the help we need.
Posted 1/19/2015 8:45 PM (GMT 0)
I failed the pulmonary function test but don't see a specialist until February, the one that came highly recommended I couldn't see until March. I'm on no medications right now. My primary's NP recommended I take zantac for my stomach pains but it made it worse. No one referred me to see a gastro however I decided to call one myself last week and left message so far no call back. My primary's office did call and wants me to do another urine sample because I had keytones in one from hospital but she doesn't want to see me for an actual appointment. I see my rheumy again in a few months. I kind of feel like I am being treated like I did when first got sick but I am confused because I actually have a diagnose now. The ER doctor asked me if I "worry about my health". Isn't it normal to be concerned when you have a autoimmune disease and haven't been feeling well? I don't see a therapist and I'm worried if I do it would be in my records.
Posted 1/20/2015 4:46 AM (GMT 0)
your therapist will not share information about you unless you threaten to harm someone or yourself.
Posted 1/20/2015 3:52 PM (GMT 0)

 I am starting to think it may be time to collect all of my records and make an appointment with a Rheummy at the New York Presbyterian Hospital. I was thinking maybe even contacting the Mayo clinic but I would rather do something more local first before traveling so far. Today I feel like my esophagus is inflammed but Im just hoping its unrelated to all of this. Also I should have been more clear about the therapy concern is due possible employment reasons however maybe it would be just fine and I am over worrying about that aspect of it. 

Thank you all for your responses.

Posted 1/20/2015 5:00 PM (GMT 0)
I used to be very cautious about therapy - made sure it wasn't run thru insurance, all that stuff - due to concerns about employment (well, really more because I had a very high level security clearance). But that was in the '80's and today it really isn't anything to be concerned about.

When your spirits are lowered due to health concerns it is perfectly normal and valid to need help, and I urge you to take advantage of what is available. It certainly can help us feel less crazy to be validated by another kind of health professional, and they often have ideas that friends/family don't because they aren't as involved & can see more clearly.
Posted 1/21/2015 1:59 AM (GMT 0)
Security clearance was my concern. Maybe I will look into talking to someone. Being sick all the time has really been getting me down lately. Also it does tend to make me abit on the anxious side.
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