Should I be feeling better, not worse?...and what to do?

Hello all,

I need some advice or some guidance.

To cut a very long story short, I have been diagnosed with lupus for almost two years, after four years of attempting to find a diagnosis for a multitude of symptoms...I'm sure many of you know that story. To complicate things, I also have pretty severe Celiac disease which has been under control by strict diet since age 15 (I am now 28).

I have been on CellCept for about a year and a half, and prednisone and plaquenil off and on for four years. Since my diagnosis, I have been on prednisone and plaquenil continuously. I am currently on 10 mgs of pred daily, though I could probably feel better if my dose was higher. However, the side effects... the bloating is the worst for me, but I also feel that it contributes to depressed mood.

I got a new rheumy six months ago, because my original rheumy had to take a long leave of absence. I originally liked the new rheumy, but now I have noticed that she seems somewhat removed and rushed during our appointments, responding like she hears what I am telling her but I can tell that it goes in one ear and out the other. That is one of my problems.

My other problem is that I seem to be getting worse. Rather than getting better as I think I should be after being on 2000 mgs a day of CellCept, as well as daily pred and plaque, I overall feel worse than I did six months ago and even a year ago. Some of my symptoms have gotten worse and I have developed some new ones. (To be fair, some symptoms are better too.) I have leg pain that I have had for several years but it has just gotten worse--it worsens with activity and hot baths and I worry about vascular issues because one of my original lupus tests showed I need to remain aware of potential vascular problems. The leg pain sometimes keeps me up at night.

I have achy limbs several days out of the weeks, and overall my energy is low. I have no energy except to got to my job and come home. And I have a symptom that I rarely had before: joint pain and swelling, particularly my wrists and shoulders and hips, especially on the right side, and occasionally my ankle. The swelling is minimally noticeable but the pain is often significant. My hip, especially bothers me tremendously and sometimes even hinders my activity, such as walking my dog.

I am frequently nauseous, frequently dizzy, and frequently weak.

Basically, I feel like I am in a mild flare 70% of the time. 20% of the time I feel kind of okay, and the other 10% I feel like I am in a severe flare.

My blood testing has been overall okay, except my complement factors have been low each time for my past four blood tests. Granted, who knows what they would be like if I was off the prednisone, which of course is the ultimate goal. Two blood tests ago I had protein in my urine, but that didn't happen again.

My questions are.... by this time, on all these meds, shouldn't I be feeling a little better, not worse?
Should I find a new rheumy, one who seems to truly listen and want to be proactive?
Should I think about trying a new medication, such as Humira?

Thank you in advance for your advice and listening "ears" :)