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Vent about peoples lack of understanding......
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Lupus
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BreRosie
Regular Member
Joined : Jun 2016
Posts : 69
Posted 1/12/2017 11:56 AM (GMT 0)
This isn't about
lupus but I'm many of you can relate. My daughter,12, was planning on staying at her friends house tomorrow tonight for a sleepover and she mentioned yesterday that her friend had a nasty cold at school and she didn't think she should go. My daughter has kidney disease. She is and has been on immuno suppressants since she was two. I agreed with my daughter that we should probably hold off on the sleepover . I called the other mom and said as much. Her response was " its just a cold whats the big deal" I calmly explained that a cold can be a very big deal to someone like my kid and how and why. The other mom seemed really annoyed . I offered to have the sleepover at our house as soon as her kid was better. I just don't get why its so hard for people to understand. what a cold means to a healthy person is generally a minor thing but to someone with a chronic illness it can be a severe set back.
10bmd10
Regular Member
Joined : Oct 2016
Posts : 25
Posted 1/12/2017 12:18 PM (GMT 0)
Frustrating! I'm going through something similar. Recently Dx'ed with Lupus, and my friend knows this. She asked me why I was cranky the other day. I had thought I had done a good job of putting on a happy face, but I guess not. So, I told her how ill I've been feeling, and how the new medicine is making me feel worse (temporarily). Her response essentially was "sorry you're going through that, perhaps we shouldn't hang out until after you feel better."
couchtater
Elite Member
Joined : Jul 2009
Posts : 14475
Posted 1/13/2017 1:12 AM (GMT 0)
I've been staying at my sister's house a lot last year and this year tending to her due to illness. Her husband has put in CF and florescent lights everywhere in the house. Now they both know they make me sicker, but they haven't made any attempt to change them over to LED.
My sister needs me here right now, but I'm in such pain right now.
Butterflake
Veteran Member
Joined : Jun 2006
Posts : 1650
Posted 1/13/2017 8:04 AM (GMT 0)
Once in a while when I tell someone about
my Lupus they reply, "Good luck with that."
If I had the energy I would slap 'me upside the head.
Love, Butterflake
Lisabeans
Regular Member
Joined : Jun 2015
Posts : 154
Posted 1/17/2017 8:04 PM (GMT 0)
I just had a friend come down with the flu. Her husband is out of town for work and she has twin 9 year olds. She asked me to take her son for the 3 day weekend so she can rest. She got annoyed when I said no. Besides my condition, my husband is fighting a gi/fibro thing.
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