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lupus flare ups- too exhausted

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Posted 1/24/2018 4:28 AM (GMT 0)
Hi everyone,
I've lived with lupus for 2 years. I used to treat the disease with Prednisone, Turmeric and vitamin D3 Recently, lupus flares have recurred and make me exhausted. Fatigue, joint pain and short of memory. What should i do to reduce flares?
Thank you!
Posted 1/24/2018 4:22 PM (GMT 0)
Treatments in order of general use -

Plaquenil to slow disease progression, 2-3 months till it takes effect.
Prednisone (corticosteroid) for inflammation, or if it lasts longer, Imuran, Cellcept, or MTX as "steroid-sparing" treatments for inflammation and disease control.
If none of those make a dent, there are the heavy duty treatments Benylsta, and IVIG.

Reduce flares by avoiding stress! Getting plenty of deep restorative sleep, regular moderate exercise, and healthy eating also help.
Posted 1/25/2018 2:33 AM (GMT 0)
Hi jane124,
As a lupus patient, I see that stress, unhealthy lifestyle and harmful diet will trigger lupus flares. I used to be exhausted to cope with the disease. But now, I accept it as a part of my life. I think following tips may help you to reduce flares
- Limit stress. You can do anything you like to avoid stress, including watching exciting films, reading interesting books, listening to music, or hanging out with your friends. Also, remember to reduce your work if you're tired.
- Get enough sleep. Lack of sleep can trigger flares, so you need to sleep at least 8-9 hours each night.
- Find support. If you're under pressure, you should find a trusted person to share your issues.
- Eat healthy foods. Try to avoid processed or fried foods. Instead, eat more salmon, broccoli, tuna, flaxseed and fruits.
- Do exercise. Exercise may be difficult for you on the first day. But you can try some gentle exercises like yoga, Tai Chi or walking.
Lupus flares often come and go many times, so you should have healthy lifestyle habits and diet to reduce flares. Also, you may take supplements to boost your health.
Posted 1/25/2018 3:07 AM (GMT 0)
Hi Lynnwood,
Thank you for your reply. Though I try to avoid stress, it still finds me
Posted 1/25/2018 3:20 AM (GMT 0)
Hi, Jennifer1203
thanks for your useful tips. Exercise seems to be hard for me, I tried walking but actually I felt too exhausted. Recently, I've begun eating broccoli, flaxseed and salmon that I really hate before that. This may be good for me. For sleep, I often go to bed at 10 pm, but sometimes, I can't sleep because of too tired. I wanna ask you: do supplements work well? I see many lupus patients take them to reduce flares
Posted 1/25/2018 2:12 PM (GMT 0)
Be careful with supplements -- it's actually best to ask your rheumatologist before adding any to your diet. Some things that "boost immunity", for instance, sound like a good idea but are actually the opposite of what a Lupus patient should be doing. Thus my advice to verify with your Dr - what you want to take can counteract what your Dr is trying to do with your meds. And, even if what you take is helping and Dr approved, the Dr needs to know about it to have a complete picture of your health and how to treat you!

Best wishes,
Posted 1/26/2018 2:35 AM (GMT 0)
Thank you so much- Lynnwood!
As my grandmother has taken lupufree and vitamin suppls that help reduce her symptoms, I just think that supplements also help me to fight against lupus flares. I'll have an appointment with my doctor on next Monday and maybe I'll ask my doctor carefully.
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