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Blood work question

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Posted 7/18/2018 9:10 PM (GMT 0)
My daughter has lupus and told me to go get checked for it because she feels like I have a lot of the symptoms. I went to a rheumatologist and she did a lot of blood work. My ANA came back positive but my dsANA was negative so she said I can't have lupus. I also have fibro, arthritis and real bad small fiber neuropathy which I think can have a lot of the symptoms of lupus. My question is do you agree that I can't have lupus with the negative ds ANA? Thank-you!
Posted 7/19/2018 12:22 AM (GMT 0)
How high were your ANAs? What type were they?

It's possible to have lupus even with negative results for dsDNA antibodies, but it's a little uncommon when it happens.

There are lots of other autoimmune conditions that have positive ANAs. A full work up of subtypes of ANAs should be done when your ANA test results come back positive. dsDNA antibodies are but one of many types of ANAs. The others should be tested for too.
Posted 7/19/2018 4:00 AM (GMT 0)
Thank-you. I'll check it out. It was a Nurse Practitioner that my doc sent me to and she just didn't seem to know that much about lupus. She kept focusing on my fibro and my arthritis which I don't need any help with! I was having a bad panic attack at the time and just wanted to get the hell out of there! Otherwise I would of called her out for not doing what I was there for! Is it alright if I post the results of my blood work on here? I need to know if I should get a second opinion but I'm low income and I can't afford it right now.
Thank-you!
Posted 7/19/2018 5:32 AM (GMT 0)
Many people have posted results of blood tests (and other tests) in this forum and in other sections. Feel free to share yours if you're comfortable, and I'll comment on what I can.

Again, there are many possible reasons for positive ANAs besides lupus - lots of conditions that are similar to/related to lupus.
Posted 7/22/2018 2:46 AM (GMT 0)
Yes, you *can* have Lupus without dsANA -- my guess is that your information came from your regular primary care Dr? They are general practitioners, they are not trained or experienced in the diagnosis and treatment of auto-immune diseases such as Lupus.

Since you do have a positive ANA, you do have a daughter with Lupus, and you may have some Lupus symptoms, according to your daughter, I would highly recommend a complete workup by a rheumatologist -- these are the Drs who specialize in these diseases.

In the meantime, check out Lupus 101 -- you find plenty of information there about ANA tests and what they mean, as well as a list of the diagnostic symptoms for Lupus -- you need only have 4 of the 11 symptoms to be diagnosed.
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