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Posted 6/18/2007 8:36 PM (GMT 0)
Hi, I don't have lupus but the dr suspects my mom might.  Her complaint that sent her to the doc is what he is calling Raynauds.  Her description is her finger will go numb, turn white and get very cold.  She says it can be pretty painful.  My question is this only related to lupus or can you just have Raynauds?  Thank you!
Posted 6/18/2007 9:05 PM (GMT 0)
Raynaud's Phenomenon is a disease of its own, it does not have to be associated with Lupus. See arthritis.webmd.com/tc/Raynauds-Phenomenon-Topic-Overview for more information about Raynaud's.
Posted 6/18/2007 10:15 PM (GMT 0)
TurtleGirl,

As I understand it, Raynauds can be "primary" (you only have it) or "secondary" (it is a second disease and you have another one that causes it). I had some out of range bloodwork first but then it was Raynaud's as my big symptom that led to tests that led to the tests that led to my diagnosis of MCTD.

So, we hope your Mom just has the Raynauds and nothing else. But that may not be the case so I hope she is having further testing.

Good Luck,
Sue
Posted 6/19/2007 6:07 PM (GMT 0)
Raynauds can be primary or secondary.  It is often secondary with different auto immune diseases: lupus, scleroderma, mctd are some of them.

I have mctd and raynauds is secondary.  It has slowly gotten better but it needs to be watched no matter whether it is primary or secondary.  There are treatments if it gets too bad.

Was able to be outside this winter in -11F without a problem although I dressed warmer than in the past.  It can be dangerous if severe and untreated.  So far, mine has been mild and has not warranted treatment.

Bill

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