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Posted 9/1/2007 10:04 PM (GMT 0)
hi everyone...

im having a lupus flare, my dad had to take me to the A & E in the middle of the night last night because i was in horrible pain.  because it was friday night / early hours saturday morning it was really, really busy and the dr gave me an injection called diamorphine and it did work but made me itch a lot and feel kinda spaced out and she gave me tramadol to take at home and it says on the thing that i can take 1-2 every 4 hours, but i only took 1 at first and it did the same thing as the injection and made me itch all over and its made it hard for me to sleep (its 11pm now).  my dad said its some reaction to it.... whatever... at least the pain is better but i cant take them anymore i dont think just because of the stupid side effects. 

i hate this,  i hate being in pain and i hate that i have to take more pred just when i thought i was gonna get better.  i dont know what made me have this flare tho... the dr kept trying to find out something that triggered it by asking lots of questions but i just dont know what caused it.  can it just happen for no reason? or did i do something to cause this? 

love

Ellie

Posted 9/2/2007 1:43 AM (GMT 0)
Hi Ellie, These flares can, unfortunately, just happen for no reason. I'm having a little one myself right now - all my joints are stiff and hurt. I doubt you did anything that caused it, but maybe you can keep a little journal or diary -- just brief notes of what you eat & do each day & how you feel. Then maybe you can start to see a little pattern to it? I know I feel not-so-great now because my period just started, and maybe in part because my favorite doctor is sick & has to have a heart transplant. I didn't do anything to cause this, but sometimes just life triggers lupus. It is a real drag. The only thing you can do is try and answer the doctors questions as truthfully as you can. It takes a lot of time studying yourself to start seeing very little signs....like maybe there was some little stupid thing that if you had noticed 3 days ago maybe you could have headed off the bad pain somehow. It takes a lot of trust and observation and cooperation with your doctors to figure these things out, and it isn't quick. I know it's hard to be patient, especially when you are in pain, but hang in there, ok? Cheers,
Posted 9/2/2007 1:49 AM (GMT 0)
Hi Ellie:

(((((hugs))))) honey I'm sorry you're having so much pain. Unfortunately, pain medication can make us itch when we take them. Sometimes I have to take a pain medication that makes me itch and I've got to have benadryl with it to make it not itch so much.

As to the answer of why you're flaring. It's hard to say, sometimes we flare up just because. You and I have had many many discussions about your not sleeping. If your body is over tired it can push you over the edge and have a flare. Stress can also cause flares. I know that because of your age the doctors are less likely to let you have something to help you sleep. I've sent your Dad an email and made some suggestions. You need a specific bedtime routine and the less you stimulate your brain prior to going to bed is a good thing. I know you're gonna start back to school next week, it's gonna be really really important that you rest as much as you can.

Honey I'm so so sorry you're hurting so bad. If you want to give me a call at home tomorrow please do, I'll be home. I know you hate this and you can't stand having lupus. It takes awhile to learn to read the signs of a flare and being a young teenager makes it harder. Hang in there and know we all support you and are praying for you. I also think possibly your hormones could be affecting your lupus, it's possible that it could cause a flare for you.

I'll see you in chat tomorrow, or you give me a call if you need to. I'll see you tomorrow and I know it'a 3am your time I hope you're sleeping now.

Love you,
Barbara
Posted 9/2/2007 1:50 AM (GMT 0)
Hi Ellie, I don't think we have ever met. I couldn't see where you had posted before. Of course so many people come here that I don't always remember with my foggy brain. Anyway unfortunately morphine and any pain killers can cause itching. I get that if I take alot of vicodin. Maybe you can take benadryl to counteract some of the itching? You shouldn't have to suffer with all that pain. as for your question did you cause this? Well I sincerely doubt it. While it's true that some stress and over doing it can bring on a flair it's also true that you can flair for no reason at all other than your body feels like it. Don't be kicking yourself for this happening to you. You can't help it. Maybe if you try some ice or heat on your joints you can get a little releif but I would really try to take somthing for the itching before I would give up the pain killers. I understand the prednesone all to well. It seems to be the one thing most of us can't quite get away from. I am so sorry you are going thru this. Please keep posting and letting us know how you are doing. Don't except that you have to live in pain. If you can't get help from one doctor try another and another until you get the help you need.

Sending good thoughts and prayers your way

hugs

carol

Posted 9/2/2007 12:31 PM (GMT 0)
Hi Elle
I am sorry that u are in a lot of pain. I hate it myself too. We never know where the pain comes from. We do not do anything to cause the pain. They just love to attack us wherever they like. Sometimes when we are in a flare, we will be in pain. Sometimes the humidity will cause the pain, just like I am right now, having a R shoulder pain for over three weeks now. I hope you feel better soon.
Posted 9/2/2007 1:44 PM (GMT 0)
(((((Hugs))))) Ellie. I'm also sorry that you are in so much pain and that you are flaring. Like the others said, sometimes pain meds can cause the itching. When I first started taking tramadol, it made me really itchy, but after being on it for a few weeks, the itching stopped and now I've been on it for about 3 years. Like the others said, sometimes it's hard to know what sparks a flare. I sometimes get them out of the blue and have no idea why I am flaring. There are other times when things get really busy and/or stressful which will then throw me into a flare. This disease stinks because it's so unpredictable. Hang in there and please keep us updated on how things are going. Take care
Posted 9/2/2007 5:03 PM (GMT 0)
Hi Ellie,

How are you? I hope you are feeling better. I know growing up with lupus and arthritis really stinks sometimes. When I was diagnosed I was told it was rheumatoidal, the lupus diagnosis did not come until my 20's. I am now 32. I remember being tired alot, lack of sleep or too much sleep, and oh the joint pain but all I had then was tylenol. I am highly sensitive and allergic to medication and I too break out from the tramadol. I am always itchy and wake up with hives when I take it. Besides the Benadryl, which will also help you sleep, 2 things my allergist have me take and it does help me alot are claritin and pepcid ac maximum strength twice a day. I know the claritin says once but twice a day for hives is common and it is very mild. the claritin blocks the histamine1 receptors which are the skin, and the pepcid blocks the histamine2 receptors which is through the stomach that produces the itchies.

I hope you find relief soon. There is nothing worst than being tired and in pain and then itching all over. With school starting and trying to be a teen, this does not help you any I know. I hope things are well, and lots of hugs to you.

Leta
Posted 9/2/2007 5:14 PM (GMT 0)

thanks everyone, i didnt sleep at all last night and ive been in bed all day... the pain is still there but the medicine works.. im just tired now.  im sure ill sleep better tonight, i hope i do anyway last night was terrible.  but i do feel better than i did yesterday tho, which is good.

love

Ellie

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