Hi Martha's Vineyard,
Yes, I really thought I was dying at one point! And I really can't even go on strong antibiotics anymore, because they put me straight into bed. My 1st LLMD was pretty much learning at the same time I was about
Lyme...and although I love her for taking on Lyme patients and diagnosing me, I feel she didn't know what she was doing at times. But this is a journey for all of us, huh?!
Anyway, what I would do differently is not take so many abx that I felt terrible and constantly herxed. I would probably do light abx with supplements or something holistic. People say a herx is suppose to happen, you get worse and then feel better. I never felt better. Whenever I was on the abx I felt terrible (my LLMD at the time didn't know about
detoxing either). But, big but, I may not be as well now (I do have good days now) if I didn't do the abx. So I would never condemn them and I think it's different for everyone. The part I haven't figured out yet is what holistic approach works best. I guess we are all working on that.
Another thing my LLMD didn't push was probiotics, so I wound up with a hugely stubborn systemic yeast infection. I think we all know about
that now, though. And finally she didn't know about
co-infections at the time...and either did I. So I went on IV abx and found out 2 years later that I had Babesia...so I had to do more abx (oral). So I would have done a lot differently!
But specifically, which has more to do with what you are going through, I would have done it lot more slowly and gently.
Good luck! I really know how hard this is and it really does stink to high heaven.
Post Edited (susan1122) : 2/3/2009 11:42:27 AM (GMT-7)