Posted 3/25/2009 4:20 AM (GMT 0)
Pcpc can you tell me what your websiteis so I can email you privately.
I really appreciate all of the information that you have shared. I live on the west coast and this has been a nightmare especially since there are many people including the medical community out here who doubt that lyme exists in California.
After seeing a new lyme specialist and who had me off everything for two months, she put me on Zithromax, Mepron and Plaquenil 2 weeks ago. She wanted me to start the Marx protocol which would have included IV Rocephrin for 5 months (I would not be taking one of the three I am on and forget which one). I am taking Artemisinin (3 2x daily), glutathiomone, nattokinnase, probiotics, Vit C. Prior to this I was reevaluated with another MRI w/contrast of my brain and a spinal tap only to come back to the original diagnosis of lyme.
I have had the night sweats and overall increase of neurological symptoms which include neuropathy, weakness, muscle twitching, a burning sensation in my abdomen and back. I feel like my body is about to go numb. I've had difficulty with my previous treatment, but was never on one thing long enough to tell if I am not going to respond to treatment (the last treatment was 6 weeks Rocephrin - 4 days/week in a drs office). I called Dr. Zhangs office today and hope to get in for a phone consultation. I feel like there is a missing piece to the puzzle for me and hope to get the answers soon.
Thanks again.